by Jenny Rose | Jul 14, 2016 | A Flourishing Woman, The Journey
This blog is my resignation from a job I’ve held my whole life.
Photo by Anna Dziubinska on Unsplash
It’s a big world with a lot of people in it, all living their lives, thinking their thoughts, trying to find a place to stand, trying to survive, trying to get loved. I’m just like that. I’m not rich or famous, especially intelligent or beautiful or talented. I don’t do social media. I’m not a special success or failure.
I’ve done all the average things most every American does. Grew up, got a decent education, worked, got married, had a couple of kids, got divorced, moved, got older, watched the kids grow up and fly away, worried about money, tried to do my best, made a lot of mistakes.
But all that was incidental to my real job.
My real job has been to please people.
I wonder how many of you read that last line and felt sick. I know I’m not alone. I know you’re out there, as invisible and tired as I am.
I now intend to Fail to Please Others.
That’s not to say I refuse to ever please anyone again. No. That would only be another kind of jail. What I mean is now my choices are not based on what he/she wants me to do, say or be. Now my choices are based on The Right Thing To Do — for me.
I nearly always know what people want from me. I nearly always can identify The Right Thing To Do for myself. The problem is they’re rarely the same choice and I always, infallibly, reliably, boringly, sickeningly choose to please.
Why do I do this? Oh, that’s easy.
I believe I won’t be loved if I don’t do it.
Now think about that. Think about a life empty of people who love you. No one. No parent, no family member, no child, friend, lover. Think about believing, all the way to the soles of your feet, that if you Fail to Please, people around you will withdraw or withhold their love and/or leave. Forever. As in permanently.
I assure you I understand, as all People Pleasers do, that pleasing others to get loved doesn’t really work. Oh, in the moment you might get rewarded for it, but it never ends, the pleasing. Once isn’t enough. 100,000 times isn’t enough. Also, some people are impossible to please. Someone like that probably taught us this dreadful belief in the first place.
Well, life has just given me exactly what I needed to finally decide to make a change. Something happened, and I said no.
I never say no — at least not when I know the answer wanted is yes.
The answer wanted this time was yes, and I said no, because that was the true answer, the honest answer, the Right-Thing-To-Do-for-myself answer. I said it repeatedly to the two people whom I love best in all the world. There was upset, and outrage, and fury. There was a scene, not a violent smash-the-dishes-scene but a verbal scene, the kind I’ve spent my whole life trying desperately to avoid, the kind of scene that makes me want to run out the door and throw up under a bush. The word “betrayal” was used. But something about the whole situation woke up a deep streak of stubbornness in my nature and I just kept saying no.
I laid awake all night crying, telling myself now I was truly alone, as these two who heard “no” from me are the center of my heart.
But the next day I asked one of them if he still loved me, even though I said no.
And he said yes.
Now, bear with me while I explain what all this has to do with this blog.
I’m a writer. I’ve got a finished manuscript, another started, and am exploring the hair-raising process of getting published. I’ve always been a writer, since I was a child, but I’ve always tried to stifle it, hide it, ignore it and otherwise amputate the desire to do it from my life.
Why?
Because I find I can’t write anything but the truth.
My truth is unacceptable.
It Fails To Please.
The digital age has swept over us and people blog. I read lots of blogs. I’ve wanted to blog myself for a long time.
But I haven’t.
Why?
Because everything I want to blog about will Fail To Please — someone.
This is my first post. I’m still building the site. Feel free to explore and watch for new additions. Check back for weekly posts. Please leave a comment. Let’s have a conversation. If you’re hateful or disrespectful or a spammer I will block you without apology.
Please accept my resignation from the role of People Pleaser, effective immediately.
Photo by Roman Kraft on Unsplash
All content on this site ©2016
Jennifer Rose
except where otherwise noted
by Jenny Rose | May 4, 2017 | Choice, Power
Last Friday I resigned from my medical transcription job. Shortly after emailing my letter of resignation to my supervisor, she called me, wanting to know why.
I told her the truth. I don’t feel as though my contribution matters. I don’t like the company culture of perfectionism and high stress. I don’t feel valued as an employee, and my skills and talents are worth more than I’m receiving.
Photo by rawpixel.com on Unsplash
We parted in a friendly manner. She assured me I was eligible for re-hire any time and wished me well. I wished her and the rest of the team well. Cyber handshakes and smiles all around.
I’m in the middle of selling a property back in Colorado. I currently have wonderful renters in the house. They’ve been honest, cooperative, open and have done every single thing they’ve said they would do. They’ve become friends. I’m faxing paperwork, including the lease with these tenants, to Colorado and working with my Colorado real estate agent long distance. The agent expressed surprise that our rental agreement didn’t contain language about punitive consequences if the tenants suddenly decided to break the lease and leave.
It never entered my head to limit my tenants’ choice to leave if they were unhappy. Obviously, at least one property professional feels this is inappropriate business practice, but why would I want to force two people whom I respect and like to stay in a situation that wasn’t working for them?
Answer: I wouldn’t want to, I didn’t want to and I don’t want to.
Last evening I had a long conversation with one of my sons, and among the things we talked about was the idea of noticing how things are within ourselves and the choices we make about our own unhappiness and discomfort.
This morning, as I fried bacon and sausage and worked in the kitchen, I was thinking about this week’s post, trying to come up with something I wanted to write about from my current experience, and suddenly all these interactions lined up in my head (Clunk! Clunk! Clunk!) and I thought, well, there it is. I want to write about quitting.
What do you think of when you think of quitting?
Photo by Milada Vigerova on Unsplash
I think of the word “should,” as in should quit smoking, should quit drinking, should quit eating so much sugar, should quit fill-in-the-blank. These are the kind of circumstances under which quitting is supported and validated, but the “should” is an instrument of shame, guilt and fear, as well as a thoroughly ineffective motivator.
I was taught being a quitter or a dropper outer is a desperately mortifying thing. Quitting is associated with betrayal, abandonment, failure, letting others down and weakness.
Quitting is often an act of aggression. It’s what we do when we’ve hung on by our fingernails until they’ve torn out, one by one, and we have to let go or die. It’s hitting bottom. It’s burnout, breakdown and nothing left to lose, often accompanied by scenes, meltdowns and an exchange of insults.
Quitting is selfish and irresponsible. Choosing to be happy is an embarrassing thing to admit. We’re told If everyone did what made them happy, everything would unravel. Nobody would work. Important things wouldn’t get done. The economy would collapse.
There are cultural consequences for quitting. The label “quitter” impairs our ability to get hired, find stable relationships or make financial choices. A quitter is unreliable and untrustworthy at best. Someone who quits their marriage, family or children is so despicable as to be unforgiveable in some cases.
The word quit, according to a quick search, means to leave a place, resign from a job or stop or discontinue an activity. In short, it’s a word that defines a choice. Interestingly, one of its origins is Middle English, in which it means “set free.”
Set free sounds a lot more positive than quitting, doesn’t it?
It occurs to me that the whole idea of quitting is rooted in power. To quit is to stop. How is it that the culture is so unfriendly and unsupportive, for the most part, of making a choice to stop? Why are we so consistently and pervasively discouraged from saying no, from quitting, from changing?
I’ve written before about the yes and the no. To be in our full power, both consent and dissent have to be available to us. We have to be able to make a real choice. The inability to freely choose points to a power-over situation, and it doesn’t matter if it’s work related, relationship related, addiction related or some internal limitation like fear. Something or someone is interfering with our power to freely choose if we can’t make a choice to quit.
Said a different way, the problem is not so much the addictive substance, the miserable job, the narcissistic family member or the abusive romantic relationship. The problem is we’ve been systematically amputated from our full power to choose.
Sadly, this is a consequence, at least in part, of our current educational system in the United States. It doesn’t work for a lot of kids. It didn’t work for me. It didn’t work for my kids. I told my sons the same thing I was taught when they complained. Education is important. Everyone has to go to school. It’s the law. We all have to do things we don’t want to. Being happy doesn’t matter.
Ugh. I wish I hadn’t believed that. I wish I hadn’t said it, and more than anything I wish I’d listened to their distress and taught them to respond to it appropriately by responding to it appropriately myself. At the time, all I had was what I’d been taught, and I’m absolutely certain my own mother taught me the only thing she knew as well.
Photo by Gemma Evans on Unsplash
The point is few of us learn how to respond to our discomfort or unhappiness, either by expressing it appropriately or taking action to help ourselves. Public education certainly doesn’t teach it. The way we work in this country doesn’t support it. Patriarchy in general doesn’t validate self-reflection, honest communication, or simply saying, “No more. This isn’t working for me. I’m stopping. I’m quitting.”
On the other hand, we’re great at demanding and commanding, as in “You should … You will … You must … You have to …” However, living in a cage of internalized and externalized shoulds is more power-over. When the shoulds have our power, we’re not free to choose. I know, because that’s how I’ve lived most of my life.
One of the hallmarks of power-over is its resistance to change. Change threatens the status quo. Traditional marriage vows are forever, no matter what. Many jobs reward length of service. We’re encouraged to grow up, settle down, get a stable life. Loyalty, dependability, reliability and predictability are all rooted in not changing.
But we do change. Our bodies change. Our needs and desires change. We learn new information. The things that captivate and delight us change. The best of us learn, grow, question, seek new experience, dance elegantly with challenge and tension, and develop a healthy relationship with being wrong. The best of us spend a lifetime making friends with our changing selves, investigating our motivations, our patterns, our behaviors and beliefs, our weaknesses and strengths, and doing battle with our fears and demons.
A relationship, job, priority or place may be a perfect fit at some point in our lives, and then be outgrown. A coping mechanism or response may work very well, even save our lives at one time, and cripple us at another. Life is always changing. The ability to flow with change, to welcome it and play with it, responding with free choice after free choice, defines a well-lived, powerful, elegant life
Quitting, like boredom, has a bad reputation. I suspect this is mostly due to a cultural smear campaign. My son is in his 20s, and as he shared parts of his experience with me, I realized we’ve arrived at the same place, he’s just 30 years ahead of his late-blooming mother. He’s reclaiming his power to respond to his own discomfort and distress and choose what to do, based on prior choices and how they worked out. He’s not waiting until he can no longer bear his unhappiness. He’s not quitting in a blaze of hand grenades and gunfire. He’s not self-destructing. He’s allowing himself to stop, to change, to leave. He’s setting himself free of what doesn’t work for him, and he’s doing it without guilt or shame or the need for outside validation.
Quitting is an art. I can be done with respect, gratitude and dignity. It can be a gift of love and authenticity to self and others. The right person for a job, place or activity is not someone who hates the job, place or activity. The right job, place or activity for us is not the one that makes us unhappy. Commitment, responsibility and keeping our word are all important things, but not unto death. Not unto madness and broken-down health. We are allowed to set ourselves free. We are allowed to change. We are allowed to learn. We are allowed to try and fail and move on.
I began this project of blogging with a letter of resignation. This week I sent another letter of resignation. In both cases, I hung on long after I knew I was miserable because I was afraid to make a change. I have more work to do in building trust with myself, but I’ve made a start.
I quit. My daily crime.
All content on this site ©2017
Jennifer Rose
except where otherwise noted
by Jenny Rose | Mar 30, 2024 | A Flourishing Woman, Self-Love
When I wrote about internal locked rooms earlier in the month, I had no idea how much there would be to unpack. In subsequent discussions about locked rooms and unconditional love (for a connect-the-dots map go here) a friend tells me she believes trusting herself is the biggest barrier for her in unconditionally loving herself. Me being me, I asked her how we define trust. In asking her I asked myself.
Photo by Jonathan Simcoe on Unsplash
Here we go again.
Trust is defined by Online Oxford Dictionary as “firm belief in the reliability, truth, ability, or strength of someone or something.”
Trust is a tricky subject for me and I’ve so far avoided taking it head on, but this feels like the right time. Part of my hesitation to talk about it is my own identity as a person who doesn’t trust easily.
I feel that piece of identity as a shameful aspect of my character. As I write this, I have a vivid childhood memory of being in the back of a dim car in a blinding snowstorm feeling scared. An adult in the car was also fearful, as were the family dogs. The driver asked me, “What’s the matter, don’t you trust me?”
The answer clamored inside the car, “NO!” For a moment it seemed to me we’d all shouted it, though nobody said a word and I huddled, frozen with fear and not daring to speak, in my corner.
It’s bad not to trust; disloyal, unloving, unnatural. But I learned very young trusting those around me was dangerous. All my life I’ve been torn between my shame about not trusting and a determination to survive and learn to self-defend … which sometimes (often?) means not trusting.
I don’t see trust as a black-and-white belief. I might trust someone completely with money and business affairs, but not at all as a confidant. I might trust someone as a parent but not as a dog walker. I might trust someone’s essential goodness but not their reliability in following through on plans.
This question of trusting ourselves, though, is slightly different. What does it mean, exactly, to not trust ourselves? What do I mean when I say it to myself?
Trust is defined as a belief, and beliefs can and do change. Belief is a choice. My belief that I’m untrustworthy is not something I was born with, but something I internalized from my family. I’m untrustworthy because I’m dramatic, I struggle with math story problems, I have needs and feelings, I’m intuitive, I’m sensitive, I have boundaries, I challenge authority and rules, and I tell the truth, among many other reasons.
Internalized voices are a bitch, because we don’t realize or remember they came from someone outside us.
And people outside us lie. People outside us can never fully see what’s inside us. People have agendas, their own wounds and trauma, and navigate around their own internalized bullshit.
Photo by Cristian Newman on Unsplash
People outside us are not necessarily reliable sources about our worth and value as a human being.
If trust is a “firm belief in the reliability, truth, ability, or strength of someone or something,” we have specifics we can explore.
Reliability: I know myself to be reliable. I have many flaws, but my integrity is strong and I keep my word to myself.
Truth: A thorny aspect of trust. I wrote two paragraphs here about the ways in which others perceive my truthfulness. On edit, I realized none of that has to do with my truthfulness with myself, which will always be invisible to the outside world. Do I trust my truthfulness with myself? Yes. Absolutely.
Ability: This is my weakest area of self-trust. In some ways. At some times. I wrestle every day with imposter syndrome. On the other hand, I absolutely trust my ability to write, to teach, to swim, to dance, and to do many other things. Oddly, though I trust my ability in most cases, I don’t want others to trust my ability because I have a huge fear of disappointing people. This, too, is an old wound, first opened when I received constant messaging about how disappointing and inadequate I was as a child. Because of that, I don’t want people to rely on me for fear I’ll let them down, not from my perspective, but from theirs.
I told you trust was tricky for me.
Strength: Which brings me to strength. This, for me, is a no-brainer. I have absolute belief in my own strength. God knows I wouldn’t be sitting here at the keyboard typing if I hadn’t been strong all my life.
Given this mostly positive review of the components of this definition of trust, what’s the problem? Why have I so consistently mistrusted myself during my lifetime?
I can easily come up with two reasons. There may be more lurking in the background, but these two are in front: One is trust in my physical body, and the other is perfectionism.
Perfectionism is one of the first things I wrote about on this blog. It’s another piece from my childhood I’ve struggled with it all my life, and I’m certainly not the only one. I’m conscious of it now, which is helpful, but it affects every day of my life and if I’m not mindful it rules me. Publishing this blog was one of my first real efforts at resistance. It took more than a year of weekly publishing to stop feeling panic as I pushed the “publish” button after a reasonable amount of writing and editing.
Even as perfectionism drives me, I’m aware enough to know I can’t define it beyond pleasing people. Which is impossible, and I know that. Yet the internal pressure to be perfect seems to be inescapable.
I’ve also written extensively about expectations. As a child, I was expected to be perfect according to conflicting expectations from three adults on whom I was dependent. Needless to say I failed to please any of them, which meant I lived in a constant state of shame and fear of abandonment. A perfect setup for internalized self-loathing. The road from self-loathing to considering unconditional self-love has been an amazing journey.
I was aware, as I explored ability, reliability, truth, and strength above, of a little voice in my head saying, “Yes, but—,” a precursor to the time I was late, or forgot an appointment, or the occasions I did deliberately lie, or the times I felt weak, or when my ability did not live up to my own unconscious standards of perfectionism.
As I became aware of this, I realized I will never trust myself if I aspire to be perfect in these four categories. I have never been perfect, I am not perfect, I never will be perfect, and I’m not much interested at this point in my life in attaining perfection in any way.
So fuck off, perfectionism. I’m not your bitch anymore. AND you will not stop me from loving myself, unconditionally or otherwise. Unconditional love is not built on some ridiculous set of expectations.
Photo by Emma Backer on Unsplash
Which brings me to an interesting insight on my relationship with my body. Let’s not do the body-as-a-political-signal thing, OK? I’m sick of it. We all live in a body. We have baggage about how our bodies look and function. We’re pressured, every day, to try to buy a “better” body, especially children. In today’s world, many of us feel we “should” be different, no matter what we look like. Currently, we’re obsessed with appearance and virtue signaling rather than health and function.
I don’t hate my body. However, due to autoimmune issues and years of chronic pain, I haven’t trusted it. Until the last ten years or so, since I’ve gone carnivore, my physical state was extremely limiting; I was unable to engage fully in activities I loved, get regular exercise, or even reliably manage the activities of daily living without severe pain.
Now I have my inflammation under control, my chronic pain is gone, and I’m able to joyfully live the kind of active lifestyle I’ve always wanted: gardening, walking, swimming, water aerobics, free weights, stretching, a little yoga, a little Pilates, a little time in the gym. I’m healthier and more active than I’ve ever been, but I am aging, and as I age, my body is changing. (Big surprise, I know!) I noticed, in my post about unconditional self-love, some of the things I wrote about unconditionally loving were physical things. In this culture, nobody tells us to love our varicose veins, or our age-spotted hands, or our lined neck. Instead, we’re encouraged to buy something and “fix” all those problems, or at least hide them.
That’s not unconditional love. (I also deny it’s “body positivity,” but I don’t want to dive into that rabbit hole!)
I know if I push myself too hard my body will hurt. I know if I allow my anxiety to spin out of control I won’t sleep. I know if I eat a whole pizza I will a) have inflammation and pain from the carbs and b) have severe constipation (cheese). I know if I garden for too many hours at a time I’ll be too stiff the next morning to get dressed without sitting down. I know if I spend too many hours in the pool I’ll develop eczema on my elbows and hips.
Photo by Cristian Newman on Unsplash
I ask myself, does all this mean I don’t trust my body? Because it actually sounds like I do trust it to react to my choices in various predictable ways. Is what I’m really saying I don’t trust my body to be a 20-year-old perfect body?
Well …. Yeah. I guess that is what I’m saying. Pretty silly.
My friend doesn’t feel she can unconditionally love herself without trusting herself. She’ll navigate her own path through all this. My own conclusion is I can trust myself. Perhaps I should consciously start doing so. (What an idea!) For me, lack of self-trust is not an obstacle to unconditional love, but it certainly makes a nice contribution to it.
Questions:
- Do you see trust as essential to unconditional love?
- Do you agree with this definition of trust? If not, how would you define it? Can you find a better definition?
- What aspect of trust in this definition do you struggle with the most?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | May 13, 2023 | Authenticity, Emotional Intelligence
I have written about dance here before. In the structure I use, the 5 Rhythms Wave by Gabrielle Roth, chaos is part of the wave. The music for chaos is fast but grounded. Think Pink Floyd’s Meddle.
As I lingered on the threshold between waking and sleep this morning, thinking about loss, the subject of my last post; thinking about my distressing inability to publish my usual essay on Substack last week, and thinking about the ways in which I’m reshaping my beliefs about my family and therefore myself, I recognized the chaos part of the dance.
Photo by Leon Liu on Unsplash
To dance in chaos involves letting everything go except the beat. Chaos is about strength, not beauty. It’s about grounding and staying grounded even as the music flings us through space.
Chaos is the part where you dance till you drool.
The edge of chaos is fertile, regenerative, thick with possibility. It’s also powerfully disorganized and unpredictable. It’s exhausting, overwhelming. Too much is happening too fast. When dancing chaos, we give ourselves entirely to the music and follow it through the tumult however we can. As Margaret Shepherd said, “Sometimes your only available transportation is a leap of faith.” Add music to that idea and you have the chaos part of the dance. The car has broken down. The planes are grounded. The train has derailed. The illusion we’re in control has shattered. Our routines and schedules fall apart around us. Our internal and external worlds begin to reshape in ways we can’t understand.
I’ve been troubled in the last couple of weeks by the violence of my rebellion against doing anything except work and play in the garden. I don’t want to write. I don’t want to think or reason. I don’t care about the damn housework. Beltane, May 1st, came and went without my usual ritual and practices. I don’t want to be brave, strong, organized, compassionate, tolerant, empathetic, or responsible.
I can’t remember a time in my life when I’ve shut down like this. I’m unable to guilt or lash myself into being “productive.” I feel ashamed and scared. I don’t recognize myself.
It occurs to me this is my Beltane ritual this year. After all, Beltane is about fertility. Physical fertility, the cyclical fertility of the growing season, creative fertility. My ritual this year is being in the garden. There, with my knees in the dirt, the smell and feel of the soil, the texture of new weeds and old leaves and matted grass (we didn’t have a mower last year), I am peaceful. I know where I am. I am, literally, grounded. I don’t have my phone. Nobody needs anything from me. I bend, kneel, stoop, dig, rake and shovel compost mindlessly. I dream vaguely about new garden beds, rewilding with native shrubs and trees. Black flies come for their drop of blood. The sun shines down on me.
Right now I need to be in the garden. I don’t understand it entirely, but perhaps there’s no need to. What I do know is something in me refuses to engage with anything else. As the lilies and iris emerge, as the tulips bloom and the daffodils fade, as the lilacs bud and the magnolia blossoms fall and cover the ground, I mulch and prune and feel seismic forces beyond my control reshape me internally.
Photo by Kelly Sikkema on Unsplash
So much of what I’ve learned and believed about my family and my place in it has crumbled into dust. Old family myths have exploded with fragments of evidence from Mom’s life, unearthed in the process of selling her estate. I didn’t entirely believe in some of those myths, but they were stable. They provided a family background I was familiar with. I built an identity from the identities family members who came before me created. If I am not the despised one, the broken one, the one who doesn’t belong, the cuckoo in the nest, who am I? Has all that been yet another family myth? Has any of it ever been about who I really am or my personal value, or have I been nothing but a faceless, nameless piece in a dysfunctional family pattern?
I long for freedom. Is this the beginning of freedom?
My recent inability to force myself to take care of business, to be responsible, consistent, and productive, is terrifying. I’ve always pushed myself through any resistance or fatigue. I’ve always known I must justify my existence with constant production, pleasing, and caregiving.
Am I free of that now? If I don’t have to justify my existence because that belief is a lie based on family mythology that’s at least part lies, is that freedom? Am I brave enough to take my freedom, walk away from all the burdens (too heavy for me, but I’ve carried them anyway), and simply choose what makes me happy? I have stood at this crossroad before.
Two weeks ago I wrote about loss. Now I’m watching glimmers of new beginnings, nebulous glints of what might come into the disturbed ground of my being. I pick up trash and find rich soil beneath it. I dig up dandelions and burdocks and discover little patches of old garden. The sun touches me without asking for anything in return. I rake away last year’s debris and mix it with compost to build new garden beds. This morning, the crab apple is in bloom. The tight buds on the white lilac by the porch door gather perfume.
Meanwhile, back in Colorado, strangers live in my mother’s house. Hospice tells me Mom can no longer ambulate independently, even with her walker. A call in the middle of last night reported yet another fall, as she doesn’t realize (or won’t admit) her own weakness. Appraisal revealed my wealthy and powerful grandmother’s gold, pearls, and gemstones were mostly costume, not real. A ladylike façade. A denial of her impoverished roots. A glimpse of shame and fear that rival my own, though I never knew they were there.
Photo by Doug Maloney on Unsplash
It’s Mother’s Day weekend. A friend asked me yesterday how I felt about that, and I had no words.
What is real? What can I bear? The dirt on my knees, under my fingernails. The spectacularly itchy, burning welts of black fly bites. The egg shells, banana peels, and soggy segments of lemon in the compost pile. The lovely cupped double tulips I planted last fall, white, pink and purple. The thumb-sized bumble bee tumbling ecstatically among the pink blossoms of the crabapple. My own breath, heartbeat, sweat. The sun on my skin.
Gardens are made and remade. They die and are reborn. They go wild and survive until rediscovered. They adjust, adapt, take advantage of the edge of chaos according to their own wisdom and purpose.
For now, I’m in the garden, dancing with chaos, nurturing new life, hanging on.
Questions:
- What is your experience of Mother’s Day?
- In the times during which you struggle to manage your life, are you fearful or do you allow yourself to follow your needs?
- Do you find chaos joyful and exhilarating or frightening?
- What opportunities have you had to reframe your family?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Mar 11, 2023 | Emotional Intelligence, Feelings
In January, my brother and I traveled to Colorado to transition our mother into memory care.
As some of you know and many can imagine, a journey into dementia is an unsettling one on good days, by which I mean relatively calm days. On bad days, days of panic and confusion, days of anger and restlessness, it’s heartbreaking.
One of the greatest challenges for me is the chaos of my jostling feelings, all mobbed together and struggling for attention. I can’t feel everything at once, and I can’t focus on one thing at a time. One minute I’m entirely relieved because I know she’s in a safe, protected environment being well cared for, which has not been the case for the last ten years. Knowing she was living alone, driving, walking her dogs, and slowly losing her ability to function and manage her own life and I could do nothing about it took a daily toll.
Photo by Cristian Newman on Unsplash
The next minute empathy and compassion overwhelm me and I’m reminding myself to maintain boundaries. She is not me. I am not her. My attention needs to be on taking care of my own feelings. If I could have effectively helped and supported her, I would have started doing it when I was five years old. I never found a way because there is no way.
Then I’m angry. Angry because I tried to avoid this particular outcome. Angry because she wouldn’t help herself when she had the ability to. Angry because I’m still in the position of parenting and taking care of my parent, which has always been the case. Angry about her suffering and confusion, and mine.
At the end of every conversation we have on the phone, I tell her I love her. It’s true. I have always loved her, but was not allowed to say so. She would ignore such a statement, or dispute it. She says it back to me now. It always makes me a little bit mad. It was a thing she would not say outright before. She’d sign herself “Love, Mom,” but she wouldn’t say it. She’s not a person who offers or accepts any kind of touch. Does she really love me, or is she merely participating in the familiar ritual of the exchange? Did she feel it all along but couldn’t say it?
Even before her dementia onset, Mom wouldn’t have answered these questions. I will never know.
I’m also sad. It’s not a sobbing, tearing grief, but a gentle, diffuse one, like watching a teabag steep in hot water and gradually turn it into tea. I don’t feel it all the time. There’s resignation in it, and acceptance, and surrender.
Mom is receiving palliative care under a local hospice organization. They recommended a book to me, titled The 36-Hour Day, by Mace and Rabins. I bought a copy. It was hard to read because it stirred up uncomfortable feelings, but it’s also a goldmine of information, including the latest research and standards for dementia care. It’s enormously validating. I read about specific behaviors and the stages of dementia and realize I have been struggling with Mom’s gradual disintegration for years. Nobody else saw it, so I was alone with my fears and concerns, but I knew she was slipping and I suspected this time was coming.
What I was most hoping for from the book was a script for dealing with difficult questions and conversations. I have some professional experience with dementia and am comfortable with refraining from using logic or trying to bring anyone back to reality. Mom has always believed entirely in her narratives, which often were distorted, paranoid, and inaccurate, so I have a long and painful history of managing her stories and beliefs. However, now the briefest conversation is fraught with pitfalls I don’t know how to respond to or address. I spend a lot of time on pause, frantically trying to figure out the best way to engage with her.
Photo by Quino Al on Unsplash
The book didn’t give me a script, per se. What it gave me was a simple strategy for everything: reflect and validate feelings. Not the stories (thoughts), but the feelings. Emotional intelligence strikes again.
This was good news for me because I’m highly emotionally intelligent, even in this difficult personal context. I know how to recognize, name, and manage feelings. On the other hand, it seems like so little to offer. It’s hard to provide comfort in the context of dementia. Language feels pointless. Nonverbal communication is useless over a long distance and, in this case, in person. Mom has flinched away from me too many times for me to even think about touching her. On the phone, all I have is language. Following my impulse to reassure, to explain, to provide some kind of structure, only makes things worse for both of us. I measure my effectiveness by the level of her distress, which is eerily like measuring my effectiveness by the degree to which I can please her. Even that may not be accurate. Mom’s distress has always been extreme in the face of boundaries, limitations, the word “no,” and any questioning of her particular narratives and beliefs. It’s a personality trait having nothing to do with me personally. The mere fact of her feeling confined (which is accurate) may be the root of her distress rather than anything I’m saying or doing. Or not saying or not doing.
It occurs to me feelings live inside the just-born infant. Maybe before that. Certainly, we experience feelings long before we master language. I’m realizing intellect, logic, language, can all fall away at the end of life, too, but the feelings remain. I assume our need to be heard and validated remains.
Conversation with Mom is like wandering blind through a meadow filled with rabbit holes. Dementia is at once simple and extremely complicated. I never know how she will be or what she will say next. Sometimes she sounds down and depressed. Sometimes cheerful. Sometimes calm. Once she even told me she was “content,” a word I’ve never associated with her before. Sometimes she’s anxious, sometimes angry, sometimes groggy and hardly responsive.
When we talk, I work to set aside (temporarily) my own feelings, thoughts, memories, expectations, and predictions. I ask her how she is and listen to her response, looking for the feelings. When she tells me she needs to leave there because “everybody steals,” I sidestep the stealing accusations and acknowledge it must be an uncomfortable and discouraging way to live, and I can understand why she doesn’t like it. She perseverates on this theme off and on, and I enlarge on how difficult the feeling of losing things is, how unsettling to not be able to find our possessions. After all, she’s lost her whole previous life. Her feeling of loss, of things missing, is based in reality. On the other hand, her paranoia and fear of people (including me) stealing money from her was in place long before her dementia. I was never able to persuade her they did not reflect reality. I certainly can’t do it now.
Reflecting and validating her feelings back to her feels inadequate. It even feels condescending. But there’s nothing else I can do, nothing else to say. Witnessing her feelings is all I have left.
And, after all, maybe that’s a lot. We’re not very skilled with feelings in this culture. It’s not easy to find someone who will just listen without trying to fix or solve. Perhaps great healing lies in being heard with nothing added. I hope so.
Another constant theme is one of buying a car and going shopping when we visit. When I ask her what she needs, she can’t tell me. She needs “things.” When I ask her if she’s started a list, she never has. We are not sure she can read or write anymore. I realized when we went out to move her and worked in her house she’s a shopper. She has enough clothing for three women. Her closets were filled with shoes, both old and worn and newer. She had six or seven open bottles and jars of the same products. Her cupboards were packed with supplements and vitamins for both herself and the animals, many of them outdated. As her confusion grew, it appears she self-soothed by shopping and receiving packages in the mail. So, we talk about how much fun it is to take a day and shop for this, for that. We talk about having new things, buying special gifts for ourselves. She doesn’t want to make a list and have someone else get her what she needs. She wants to go on her own and play, buy what she wants, choose what she wants. She wants to feel free, independent, and empowered to give herself that.
She cannot understand that’s no longer possible. Even if she could, the feeling of wanting what she once had would likely persist. It breaks my heart.
Photo by Gemma Chua Tran on Unsplash
I have feelings, too. I turn to journaling, to writing. I’ve tried without success to find support groups in my area; then I found a mental health professional experienced in family trauma to speak with. I talk with Mom’s hospice team regularly; having worked for hospice, I know they want to support the whole family system. I extend to myself all the gentleness, support, and patience I extend to Mom. I hold my thoughts loosely and hug my feelings. They need comfort. They need expression. I think about boundaries and regulate my empathy. I’m newly appreciative of my own freedom and independence. I look for reasons to laugh, reasons to smile. I look for ways to connect to others. I intend to learn to receive as well as I give.
As I write this, an exuberant spring wind blows outside, pushing snow off roofs, tangling our wind chimes, shaking the lilac branches with their new, hard buds. One of the cats is stretched out on my desk in the sun. My desk calendar was in his way, so he kicked it off with his back feet. A glass paperweight pins down a card for Mom, the envelope addressed and stamped. Every Monday I put a card in the mail for her. I do it for me. She does not acknowledge them or remember receiving them. I hope they’re all displayed in her room, but I don’t know. I’m not sure she can read them. I imagine a staff person or hospice team member reading them to her. I’m not sure she can connect them with me at all. But it makes me feel better to make the gesture, and I enjoy picking out cards I think she’ll like. I’ll write a couple of lines about the weather, about the moment, about spring. I’ll sign it with the word love. I’ll put it in the mailbox and raise the flag, and the mail carrier will take it in an hour or so.
Feelings are pure. Feelings are simple. It’s our thoughts about our feelings that fester, tangle, entrap us. I want to soothe uncomfortable feelings, make the pain stop, dry the tears, turn aside the rage. All my life it’s been my role to take care of Mom, fix whatever was going wrong. I still feel her emotional dependence. I still feel the responsibility to solve every problem for her.
But Mom has traveled now to a place I can’t go and she can’t come back from. She can’t follow me, clutching at my clothing, needing, wanting, pleading, demanding, rejecting. I can’t walk beside her in a way she recognizes. We have separated. I am relieved. I am absolved. I grieve for her anguish. Witnessing her feelings without taking action to assuage them is perhaps the hardest thing I’ve ever done in a lifetime of hard things in caring for her.
But I cannot fix this. Neither of us can go back. There’s only feeling our way forward.
Questions:
- What has been you experience, if any, with dementia in a loved one or family member?
- What are your thoughts and feelings about hospice care?
- What’s the hardest thing for you in supporting an elderly loved one?
- Do you worry about developing dementia yourself? Have you made a plan?
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