by Jenny Rose | Feb 28, 2019 | Power
Photo by Chris Kristiansen on Unsplash
I think of myself as a goal-oriented, disciplined person. Most of the time I know what I want (at least I think I do). Some of the time I’m intentional and present with my choices. I like routine and can be both dogged and stubborn.
Outcomes have always been important to me. I set my sights on what I want to happen and started trying hard to achieve that desired outcome.
I don’t remember ever being taught creating certain outcomes is the way to live successfully and happily, but I structured my choices and behavior around that belief. A desired outcome was success, and therefore good. An outcome I didn’t want was failure, and therefore bad.
I didn’t consciously notice for much of my life that trying to create just the right outcome never worked well for me.
When I came to Maine and learned emotional intelligence, I started thinking about personal power and I finally really looked at how strongly desired outcomes motivated me. I was furious when I first came across the idea of letting go of outcomes. What I heard was invalidation and rejection of my ability to make long-term goals and plans and steadily, a step at a time, work toward them. I also thought I was hearing it was inappropriate to have dreams and desires. How could one navigate through life without caring about outcomes?
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It took time, a lot of exposure and a couple of difficult and painful events, but eventually I understood investment in outcomes was the problematic piece, not having needs and desires or the degree to which we are disciplined and can tolerate delayed gratification.
We do not have complete power in the way things work out because our goals and plans inevitably include others.
By others I mean other people (the job, college or mate we want), whatever our conception of the Divine might be, and influences like the weather, the stock market, the tax return we counted on, the housing market, the weather, our state of health, and a thousand other variables.
Outcomes are as unpredictable as a loose cannon on a rolling deck, yet I based my happiness and sense of worth on them for most of my life.
For the most part I was unhappy, anxious and felt like a failure.
Then, somewhere I read or heard this little phrase: “However it needs to be, it’s okay with me.”
When I first came across it, I felt angry. It was a blatant lie. I was reluctant to think it, let alone say it. On the contrary, I was deeply invested in outcomes.
But I kept noticing it didn’t work well to live that way.
For some time I watched myself using all my energy in the tension of trying to create specific outcomes that eluded me.
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In my usual buttheaded fashion, I hung on grimly. If I wasn’t seeing the outcomes I intended and wanted, it was because I didn’t deserve them. Or I didn’t work hard enough. Or I was so broken and stupid nothing would ever work for me. Or the world was against me.
It was much easier to hate myself, an old habit, than consider the possibility none of us can really control outcomes. It was easier to blame others than change myself.
What we can control – the only place our personal power resides – is what we do with ourselves in terms of our beliefs, choices and behaviors.
Deciding how to think about outcomes is part of our personal power.
I formed a conscious intention of experimenting with letting go of outcomes. One of my very first explorations into that was this blog.
One of the biggest problems with attachment to outcomes for me is the outcome looms so large it overshadows the hundreds of small pleasures in life, as well as my delight and curiosity in the journey I take through each day. I’m too busy trying to get to an outcome to notice or appreciate anything else. Attachment to outcomes means there’s only one very specific way I can feel successful or happy, and in order for that to happen all the stars must align just right and everyone and everything around me must behave exactly as I want them to. Otherwise I’ll be resentful, depressed, discouraged, hurt, or some other kind of miserable.
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Attachment to outcomes is also a relationship killer. Whatever it is we want our children, parents, spouses, colleagues, bosses and friends to do or be (or not do or be), the fact is they are not pawns on our chess board. They are not paper dolls. They are not (hopefully) ours to control.
If we cannot accept our loved ones (or ourselves, for that matter) for who they are, we will lose them.
Attachment to outcomes comes with a heavy burden of fear and anxiety. As long as an outcome is “good” or “bad’ in our minds, both hope and fear attach to it. We invest energy in trying to avoid certain events and foster others. We try to figure out how to manipulate and influence the situation so it turns out the way we want.
We lose sight of the others around us very quickly. If we have our hearts set on a job, for example, even though we’re not well qualified for it, we do whatever it takes to get hired, never considering someone else might be a better fit. Someone else might be more desperate than we are for the job. The organization might need a specific set of skills and talents we do not possess. Another job opening we’re not yet aware of might be the place we’re most needed and will be most happy.
Attachment to outcomes can make us small and rigid, selfish and resentful.
So what does it look like to let go of outcomes?
Change and the unexpected are no longer fearful, but interesting. We make space for them. We have increased room for others because we’re not trying to control them. We take life less personally. We are confident and clear in our own power.
To let go of outcomes is to let go of distractions. It frees up space and energy to consider our own integrity, expression and needs. If we want to give a gift, we do it without worrying about how it will be received, if it will be reciprocated or how it will be judged. We give because it makes us happy and gives us pleasure to do so.
If we are artists, we create because it gives us joy, because it’s what we were born for. We don’t use our talent as a tool to leverage fame and riches. That doesn’t mean fame and riches won’t come or our art is not worth getting paid for, it just means that’s not an outcome that drives us.
Letting go of outcomes means letting go of feeling victimized, resentful and betrayed. We don’t take disappointment personally. Life is not all about us.
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Letting go of outcomes makes room for cooperation and collaboration. We see others more clearly, lovingly and respectfully. We’re a more elegant team player. We enjoy working with others without the need for competition or power and control. We look for ways to share and nurture power. We give up the blame and shame game.
Letting go of outcomes means letting go of regrets. We make space instead for all outcomes, whether intended or not, comfortable or uncomfortable. We go forward with our best, most honest and heartfelt effort and have fun, letting the rest take care of itself. We use our time and energy to cultivate curiosity, wonder and gratitude for whatever happens.
Letting go of outcomes starves our anxiety, depression and insomnia. If we can position ourselves in life with confidence, surrender and acceptance, we build resilience and joy.
Let me hasten to say releasing outcomes is hard work. I find, somewhat to my chagrin, at times I’m invested in my resentment over the way things work out and my sense of betrayal. I don’t want to be soothed, comforted, or challenged to consider my experience from a different perspective. I want to be left alone to suck my thumb and pout, my version of a tantrum. Managing my expectations and attachment to outcomes is a work in progress.
I also do not deprive myself of the pleasure of making and achieving personal goals having to do with exercise, building skills, playing, relaxing or learning new habits. Those kinds of outcomes are well within my power to pursue.
When I feel frustrated and as though nothing ever works out for me, I’ve developed the habit of saying aloud to myself: “How ever this needs to be, it’s okay with me.” If it feels like a lie in my mouth, I start poking at the situation and asking myself why I’m attached to a particular outcome. I put my energy into taking a step back and reevaluating the situation until I really am okay with whatever outcome occurs. I summon my curiosity, warm up my gratitude, invite my sense of humor to awaken and go forward.
It’s the difference between rolling out of bed and telling the day how it must be in order for me to be happy or rolling out of bed wondering what the day will bring and choosing to enjoy whatever that is in advance.
It’s the difference between arguing with what is and acceptance.
It’s the difference between feeling disempowered and standing firmly in my own power.
However I need to be, however you need to be, however this day needs to be, it’s okay with me.
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All content on this site ©2019
Jennifer Rose
except where otherwise noted
by Jenny Rose | Nov 16, 2017 | Connection & Community, Emotional Intelligence, Shadows
I recently had a conversation in which I learned about the degree to which my anxiety affected at least one of my now adult children.
Parenting is an ironic business. Having been a chronically anxious child myself, always feeling unsafe and afraid, I strove mightily to protect my own children from any sort of fear or insecurity. Of course, I did this by assuring them all was well, all the while fearing all was not and never would be well. Being no less intelligent than I am, they heard the words but knew the truth of my feelings, and thus their trust in me was damaged, an exact replay of what happened between me and my own mother. You know, that thing I was never going to do when I was a parent!
Well, I’m humbled. I’m also sad, because I didn’t want either of my kids to battle with the burden of anxiety. It’s a hard way to live.
However, I understand parenting, at best, is an imperfect process, and I try to hold my mother and myself with gentle arms regarding our choices as mothers. Parenting less than perfectly does not imply a lack of love. I know we both did the best we could with what we had at any particular point in time. No parent can do more.
Photo by Liane Metzler on Unsplash
Still, this kind of revelation is a far cry from my hopes, dreams and intentions when I held my newborns. On the other hand, it speaks to the strength of my relationship with my adult children that they can tell me the truth about their experience and I can hear it.
After our conversation, I’ve thought a lot about fear and anxiety. I can’t go back and reparent, but I wonder if I might, even at this late stage, find a way to extricate myself from the insidious tentacles of anxiety. I’ve been thinking about my life and trying to understand exactly what the roots of my anxiety are.
According to an Internet search, fear is “an unpleasant emotion caused by the belief that someone or something is dangerous, likely to cause pain, or a threat.” Fear is considered real, in that it’s right there in front of us, and elicits an immediate response.
Anxiety is an “emotion characterized by an unpleasant state of turmoil; a feeling of worry, nervousness or unease, typically regarding an imminent event or something with uncertain outcome; a nervous disorder.” Anxiety is differentiated from fear by being more diffuse and generalized and focusing on imaginary outcomes and possibilities. Physiologically, it elicits the same response, and therein lies part of the problem.
Both are unpleasant emotions or feelings affecting us physically, intellectually and emotionally. We evolved to respond to fear in certain specific physiological ways, returning to baseline as the fear passes. Fear is a valuable feeling, helping us discern and avoid danger. I certainly don’t want to disable mine. I know the feeling of fear, but it’s not a frequent experience.
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Anxiety, on the other hand, is a chronic state for me. I can’t remember ever being free of it. I’ve developed a lot of coping mechanisms over the years, some more effective and appropriate than others, but I can’t imagine what life would be like without it. As far as I can tell, the feeling of anxiety provides no benefits whatsoever to me or anyone around me. It’s highly contagious and negatively impacts others in my life, to say nothing of the damage it does to me. We are not constructed to tolerate the chronic level of physiological arousal produced by anxiety.
I never before actually looked up these words, and I’ve never had the above distinctions between fear and anxiety until this week. I conclude that I have no problem with my relationship to fear, but I’m a slave to anxiety.
I find a kind of mordant humor in having a chronic unpleasant feeling regarding uncertain outcomes. Excuse me? All outcomes are uncertain for everyone until they happen! Most of us operate most of the time as though we know exactly what will happen next, but we don’t. I’ve lived long enough to know that’s all an illusion. Nobody knows what’s going to happen next on any level. For some reason, I’ve given that fact the power to make me miserable.
I have a powerful imagination, which makes me a good writer and creator. However, it also occasionally makes me captive to my own stories. I forget that my stories are just that — stories. I make them up, tell them to myself over and over, and behave as though they’re true, never really noticing when they diverge from reality. In my head, it’s all so real. I do know the difference between a story and what’s real, but I have to remind myself to keep the two separated.
Some stories are so old and deeply ingrained it takes a cataclysm to make us realize they’re not true, and then we have to deal with being wrong and all the consequences, an uncomfortable, humbling and messy process.
If my anxiety is rooted in uncertain and imaginary outcomes and possibilities, it seems obvious I can disable it with a little discipline, a dash of surrender to uncertainty, a lot of presence and the will to change. I’m chagrined by the possibility my anxiety is a lifelong bad habit as much as anything else. Could that be true? Yikes.
I wish with all my heart I’d been a better equipped and less distressed parent, but I remind myself I can’t go back. I can’t begin parenting again from ground zero. I can’t go back to the young woman I was and explain all this and give her the support and safety to actively choose to turn away from anxiety before starting a family. There’s only today, so many years later, as I sit with my laptop in my lap and the sun coming in the windows, glancing at my notes, thinking and writing.
I know all I’ve ever wanted for my own mother is health and happiness. I want the same for my kids. I suspect Mom and my sons also want that for me. Perhaps it’s time for me to shape an anxiety-free life now, not only for my own sake, but for those closest to me as well.
We build our lives on outcomes, one after another, more than we ever notice. We remember the spectacularly good and spectacularly bad outcomes, but what about the countless others? Outcomes are complex, not black and white. Outcomes can create visible and invisible ripples that last a lifetime. I can hardly think of a more fruitless endeavor than worrying about or trying to control outcomes. I’ve survived every outcome to date. What makes me think I won’t continue to do so — until I don’t, of course? But the outcome of death is largely out of my control, too. Why worry?
There are so many things I’d rather do than struggle with anxiety!
There are so many stories to imagine, share and write, rather than keep in my head and hurt myself with!
Anxiety is too expensive. I’m not interested in maintaining it anymore.
Better late than never. My daily crime.
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All content on this site ©2017
Jennifer Rose
except where otherwise noted
by Jenny Rose | Jul 20, 2024 | A Flourishing Woman, Self-Love
The more battered I feel by the news cycle and the daily externals of my world, the more important it is to spend time in solitude, focusing inward and practicing love and trust with myself.
Photo by Cristian Newman on Unsplash
(It sounds delightful, doesn’t it? So wise and functionally adult! It doesn’t read like tears; trauma; dumping feelings onto the page; wrestling with fear, despair, perfectionism, heat, humidity, housework, and (most recently) a fiery case of athlete’s foot while the garden turns into a steaming jungle outside my locked and blinded windows and the air conditioner gently roars.)
I recently reread The Mermaid Chair by Sue Monk Kidd. I haven’t read it in a long time, but it was next on the shelf, so I cracked it open. I came across a line I don’t remember and evidently didn’t remark on previously: “…I’d never done anything that took my own breath away …”
The speaker is a middle-aged woman and that line grabbed my attention.
We are consumed by externals. The male gaze. The public eye. What others think of our looks, our words, our actions. Is our virtue signaling adequate and prominent? Are we pleasing the right people? Are we flourishing our flags with sufficient outrage and hostility? Are our masks and identities firmly in place?
The more we focus on externals, the less we pay attention to our relationship with ourselves and the more broken we become.
Why don’t we think about taking our own breath away?
This might not seem important. After all, what’s more exquisite than the feeling of being in love? The sight and smell, sound, taste, and texture of the loved one. Every expression. Every word. Every insignificant detail, past and present, is breathtaking. For a time. How could we ever hope to compete with that feeling, that excitement?
But what happens if we never take our own breath away?
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Some of my favorite stories are oral tales about the selchies; creatures who are men and women on the land and seals in the sea. Most of the time the old stories are about a woman whose sealskin is stolen by a man; she is coerced into staying with him, often raising a family, with the promise he will one day return her skin. Though the captured selchie may love her children and even the man, as time passes she begins to lose her vitality and wither, for she is cut off from the sea, a part of who she is. She must have what she is made of to be whole.
As a young woman, I had no thought in my head beyond finding a husband, someone who wanted me and would love me. I didn’t think about the love I needed to feel for him; I assumed I’d do whatever it took to be a “good wife.”
Two divorces later, much older and wiser, I realize how sad this is. Now I know no child or lover, no matter how wanted or beloved, can ever leave us breathless in the same way we can ourselves. Not only that, when we rest all our being on external love, when the object of our love leaves and the feeling is gone we are left more impoverished than before, more embittered, more lost.
Taking our own breath away gives us something we never lose; amazement for our own courage, or determination, or creativity. We always remember that thing we did, and marvel at ourselves. We develop confidence and trust in ourselves. We know we can struggle through obstacles, defy odds, learn a new skill, finish a big project, or take a leap in the dark. We know we can face our own fears and beliefs, and challenge them.
I believe this is a big part of what a midlife crisis is about. If we don’t push ourselves beyond our comfort level we wake up one day bored and apathetic, and wonder if this is it. Is this all life is, the familiar round of work, home, family, and friends?
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We begin to think and dream about something more, that milestone we never achieved, that place we never visited, the opinion we never expressed, the art we never created, the truth we never dared tell.
We want … something. We need … something. Typically, we spend a lot of money trying to fill our craving, but nothing works for long because we’re looking for some intangible piece of ourselves, something stolen, something lost, something rejected. Perhaps we’re searching for our own permission or courage. Our quest becomes internal rather than external because (to our shame) we have a good life, a good job, a good-enough spouse or lover, a beloved child, yet we are not satisfied.
We want what we are made of.
No one can tell us what that is. No one knows. We have hidden it successfully from ourselves all our lives, after all. If we are lucky, one day we know what to do and have the means to do it. The outcome doesn’t matter. What matters is that we do it, we leap without a net, we create in a frenzy, we open our throats and speak our truth at last.
We take our own breath away.
Moving to Maine from Colorado was like that for me. How did I do it? I have no idea. I do remember my determination, though. I remember saying to myself I was going to do this thing no matter how impossible it was, no matter what others said about it (and me), no matter how many obstacles I encountered (I borrowed money from a friend for the first time in my life), no matter how terrified and anguished I was, I was going to do it. If I had to crawl on my belly all the way, I was going to do it.
And I did (in a U-Haul, not on my belly). And it took my breath away. Still does.
In general I’m a cautious, even conservative person. (In spite of my friend who affectionately calls me a dirty hippy!) I think things through carefully. I research all the options. I consider consequences. But sometimes this longing to find and express what we are made of is so strong we can’t think about it calmly and rationally. We are compelled beyond all that, pulled helplessly by the strength of our need to reclaim and express some lost part of ourselves. We don’t care about consequences. They are less important than finding ourselves.
I wonder if it’s a human need to experience this riptide at least once, to operate only on instinct, intuition, passion, and raw determination. Maybe it’s at least as important to follow our creativity and curiosity as it is to set concrete goals and make plans. Maybe the ability to be impulsive and unreliable is as important as dependability and careful planning.
In taking my own breath away, I’ve lived with a bad boy/man, had an unplanned pregnancy, and caught an STD. I’ve learned to dance. I’ve created visual art. I’ve written 2 books and started a third. I’ve become an oral storyteller. I’ve started and later redesigned my blog and published my fiction serially on Substack. I’ve moved to Maine. I regret none of these, no matter the consequences, which in some cases were painful.
What will I do next? I don’t know. But I’m not afraid to take my own breath away.
Questions:
- What’s the most breathtaking experience of your life?
- What part of what you’re made of are you longing for?
- How have you taken your own breath away?
- Who or what are you waiting for to take your breath away?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Jun 22, 2024 | Emotional Intelligence, Needs
In a recent conversation, someone asserted to me that ultimately everyone does what they want. I felt an immediate fury. That does not describe my life at all. I chewed on my outrage and resentment for a few weeks, simmering, until I decided to get over it and figure out why I was so hijacked.
I was immediately lost in the puckerbrush. Making choices about what we do and don’t do is intimately tied to needs and wants, and I have yet to be able to distinguish between the two once beyond the level of survival needs, or find any kind of clarity from someone else. Needs and wants are unpleasant territory I don’t want to explore. (See? There it is. I don’t want to. Yet I am, and I might need to.)
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Then there’s the whole actions versus words aspect. People say they want things but don’t act accordingly. If we really want something, our behavior reflects it. If our behavior does not reflect our stated wants, we’re deceiving ourselves, or someone else, or both. I deeply distrust mixed messages. More unpleasant territory and old trauma.
Choice is in there, too. Choice is a big subject and a major theme in this blog. As I’ve mused on the statement ‘we all do what we want to do’ and made notes (you know I always make notes), I’ve wondered how we can compare a parent in some war-torn place attempting to keep their starving child alive another day with a wealthy person trying to decide if they want to fly their private plane to Paris for dinner or stay in and watch a movie in their in-home theater and have their chef prepare a seven-course meal. With wine, naturally.
One person has limited choices, all excruciating, to achieve continued survival for a few hours. The other has almost unlimited choices, all luxuries. How can I possibly compare the two? Can we say the parent trying to keep their child alive is doing what they want to do? Come on! Yet they do want to keep their child alive, right?
Perhaps it seems complicated and confusing because it’s complicated and confusing.
I wound up with a page full of notes, some sobering personal revelations, and a hairball.
On an internet search, I found articles pointing out the distinction between doing exactly what we want to do in any given moment (a toddler or a hedonist) and doing things we don’t want to do in service to an outcome we do want. That made sense to me.
If we focus on wanted outcomes rather than individual actions, we must have the ability to plan, look ahead, anticipate, and understand possible consequences of our actions. We also must attempt to predict the responses and reactions of the people around us to our actions, which means we have to understand something about emotional intelligence …
Photo by Manuel Sardo on Unsplash
… and now we’re back in the puckerbrush. I hate predictions. I don’t like leaps of faith. (I have a magnet on my fridge that says “Leap and the net will appear.” I don’t know why I keep it. It makes me mad every time I read it. Show me the warranty on that net. Show me the weight testing. Show me the damn net, in fact. Who will set it up when I leap? Are they paying attention or looking at their phone?) I trust my intuition, but I know I can be wrong. People are unpredictable. Life is unpredictable.
And yet we humans, including me, make choices all day long every day based on what we think will or might or could happen next. I’ve written about attachment to outcomes before. As I get older I’ve replaced a lot of my desired specific outcomes with simply wanting to know I did my best, regardless of outcomes. I may not like the outcome I get, but my integrity remains intact.
And then there are the people who don’t seem to understand actions and consequences in any kind of relationship. They choose what they choose in the moment and are hurt and/or outraged to discover the downstream consequences of that choice, especially in the context of many other choices. I observe this is a frequent divide along male/female lines. Women generally see everything as connected. Men generally see most things as discrete, in their own box. This is just one reason why I think “romantic” male/female relationships can be so devastating. We are often on different pages without knowing it.
If it’s true that we all do what we want in service to a desired outcome, what happens when my choices collide with yours? If you perceive me as blocking progress to your desired outcome you’re going to feel angry, and vice versa. We’re going to want each other to make different choices aligning with our personal desires. Most of the time, people won’t do that. We’re all attached to the outcomes we want.
A big piece of this for me is emotional labor, that hidden torrent winding through my life, sweeping away incalculable energy, time, and innocence. One of my priorities is healthy relationships. Close healthy relationships require time and attention; the ability to make choices for the good of the relationship rather than considering only our own wants and needs. This is an ongoing practice, not doing something we really don’t want to do once every six months and expecting applause. It means we have to face our own demons, learn to communicate clearly and honestly, negotiate, share power, and problem solve. It means boundaries and respect. It means reciprocity.
Having learned about reciprocity, I now prioritize my relationships to the degree the other does. I will not sign up to do all the emotional labor. I’m not interested in a close relationship like that. The price is too high. I’d rather put my energy into my relationship with myself. At least I appreciate my own efforts!
My conclusion about this ‘we all do what we want’ thing (gritted teeth – it still makes me mad), is it may be true if we consider our choices in the context of outcomes. I’ve made a lot of choices out of the clear knowledge that they were simply the right thing to do, too, choices that have been terrible for me, terrible in some of their consequences, yet ultimately still were the right thing for me to do. I had no outcome in mind. I don’t regret those kinds of choices, but they left permanent scars.
Photo by Cristian Newman on Unsplash
I want to blame others for all the time I’ve spent doing things I didn’t want to do, but it seems what we do and don’t do are entirely in our own hands, our own responsibility. Our lives are built on the choices we make, big and small, every hour of every day. If we don’t like our lives, we need to pay attention. Perhaps the useful question to ask ourselves if we hate what we’re doing at any given moment is, “Why am I doing this?” If we’re focused on a particular desired outcome, we may need to stop and think about whether our actions are effective in getting us there. Spending years of our lives desperately hoping and trying to reach an outcome and doing things we hate is not effective. I know this from personal experience. Our wants and needs change over time; what we once longed for may no longer be something we’re interested in. Sometimes we need to reality check ourselves. If we’ve been trying to get loved, for example, or please someone for a long period of time, it might be time to acknowledge our goal is not attainable or not worth attaining. Sometimes no matter how hard we work for an outcome it’s not achievable.
Then there’s the flip side: None of us do what we don’t want to do. That one is equally hard for me to swallow, but that’s a conversation for another day.
Questions:
- How much of each day do you spend doing things you don’t want to do? Why?
- What desired outcome(s) in your life requires you to do things you don’t want to do?
- Do you see your daily choices as isolated or part of a larger context attached to your wants and needs?
- Do you feel forced to labor emotionally? What would happen if you stopped?
- Who in your life reciprocates your level of emotional labor?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Mar 11, 2023 | Emotional Intelligence, Feelings
In January, my brother and I traveled to Colorado to transition our mother into memory care.
As some of you know and many can imagine, a journey into dementia is an unsettling one on good days, by which I mean relatively calm days. On bad days, days of panic and confusion, days of anger and restlessness, it’s heartbreaking.
One of the greatest challenges for me is the chaos of my jostling feelings, all mobbed together and struggling for attention. I can’t feel everything at once, and I can’t focus on one thing at a time. One minute I’m entirely relieved because I know she’s in a safe, protected environment being well cared for, which has not been the case for the last ten years. Knowing she was living alone, driving, walking her dogs, and slowly losing her ability to function and manage her own life and I could do nothing about it took a daily toll.
Photo by Cristian Newman on Unsplash
The next minute empathy and compassion overwhelm me and I’m reminding myself to maintain boundaries. She is not me. I am not her. My attention needs to be on taking care of my own feelings. If I could have effectively helped and supported her, I would have started doing it when I was five years old. I never found a way because there is no way.
Then I’m angry. Angry because I tried to avoid this particular outcome. Angry because she wouldn’t help herself when she had the ability to. Angry because I’m still in the position of parenting and taking care of my parent, which has always been the case. Angry about her suffering and confusion, and mine.
At the end of every conversation we have on the phone, I tell her I love her. It’s true. I have always loved her, but was not allowed to say so. She would ignore such a statement, or dispute it. She says it back to me now. It always makes me a little bit mad. It was a thing she would not say outright before. She’d sign herself “Love, Mom,” but she wouldn’t say it. She’s not a person who offers or accepts any kind of touch. Does she really love me, or is she merely participating in the familiar ritual of the exchange? Did she feel it all along but couldn’t say it?
Even before her dementia onset, Mom wouldn’t have answered these questions. I will never know.
I’m also sad. It’s not a sobbing, tearing grief, but a gentle, diffuse one, like watching a teabag steep in hot water and gradually turn it into tea. I don’t feel it all the time. There’s resignation in it, and acceptance, and surrender.
Mom is receiving palliative care under a local hospice organization. They recommended a book to me, titled The 36-Hour Day, by Mace and Rabins. I bought a copy. It was hard to read because it stirred up uncomfortable feelings, but it’s also a goldmine of information, including the latest research and standards for dementia care. It’s enormously validating. I read about specific behaviors and the stages of dementia and realize I have been struggling with Mom’s gradual disintegration for years. Nobody else saw it, so I was alone with my fears and concerns, but I knew she was slipping and I suspected this time was coming.
What I was most hoping for from the book was a script for dealing with difficult questions and conversations. I have some professional experience with dementia and am comfortable with refraining from using logic or trying to bring anyone back to reality. Mom has always believed entirely in her narratives, which often were distorted, paranoid, and inaccurate, so I have a long and painful history of managing her stories and beliefs. However, now the briefest conversation is fraught with pitfalls I don’t know how to respond to or address. I spend a lot of time on pause, frantically trying to figure out the best way to engage with her.
Photo by Quino Al on Unsplash
The book didn’t give me a script, per se. What it gave me was a simple strategy for everything: reflect and validate feelings. Not the stories (thoughts), but the feelings. Emotional intelligence strikes again.
This was good news for me because I’m highly emotionally intelligent, even in this difficult personal context. I know how to recognize, name, and manage feelings. On the other hand, it seems like so little to offer. It’s hard to provide comfort in the context of dementia. Language feels pointless. Nonverbal communication is useless over a long distance and, in this case, in person. Mom has flinched away from me too many times for me to even think about touching her. On the phone, all I have is language. Following my impulse to reassure, to explain, to provide some kind of structure, only makes things worse for both of us. I measure my effectiveness by the level of her distress, which is eerily like measuring my effectiveness by the degree to which I can please her. Even that may not be accurate. Mom’s distress has always been extreme in the face of boundaries, limitations, the word “no,” and any questioning of her particular narratives and beliefs. It’s a personality trait having nothing to do with me personally. The mere fact of her feeling confined (which is accurate) may be the root of her distress rather than anything I’m saying or doing. Or not saying or not doing.
It occurs to me feelings live inside the just-born infant. Maybe before that. Certainly, we experience feelings long before we master language. I’m realizing intellect, logic, language, can all fall away at the end of life, too, but the feelings remain. I assume our need to be heard and validated remains.
Conversation with Mom is like wandering blind through a meadow filled with rabbit holes. Dementia is at once simple and extremely complicated. I never know how she will be or what she will say next. Sometimes she sounds down and depressed. Sometimes cheerful. Sometimes calm. Once she even told me she was “content,” a word I’ve never associated with her before. Sometimes she’s anxious, sometimes angry, sometimes groggy and hardly responsive.
When we talk, I work to set aside (temporarily) my own feelings, thoughts, memories, expectations, and predictions. I ask her how she is and listen to her response, looking for the feelings. When she tells me she needs to leave there because “everybody steals,” I sidestep the stealing accusations and acknowledge it must be an uncomfortable and discouraging way to live, and I can understand why she doesn’t like it. She perseverates on this theme off and on, and I enlarge on how difficult the feeling of losing things is, how unsettling to not be able to find our possessions. After all, she’s lost her whole previous life. Her feeling of loss, of things missing, is based in reality. On the other hand, her paranoia and fear of people (including me) stealing money from her was in place long before her dementia. I was never able to persuade her they did not reflect reality. I certainly can’t do it now.
Reflecting and validating her feelings back to her feels inadequate. It even feels condescending. But there’s nothing else I can do, nothing else to say. Witnessing her feelings is all I have left.
And, after all, maybe that’s a lot. We’re not very skilled with feelings in this culture. It’s not easy to find someone who will just listen without trying to fix or solve. Perhaps great healing lies in being heard with nothing added. I hope so.
Another constant theme is one of buying a car and going shopping when we visit. When I ask her what she needs, she can’t tell me. She needs “things.” When I ask her if she’s started a list, she never has. We are not sure she can read or write anymore. I realized when we went out to move her and worked in her house she’s a shopper. She has enough clothing for three women. Her closets were filled with shoes, both old and worn and newer. She had six or seven open bottles and jars of the same products. Her cupboards were packed with supplements and vitamins for both herself and the animals, many of them outdated. As her confusion grew, it appears she self-soothed by shopping and receiving packages in the mail. So, we talk about how much fun it is to take a day and shop for this, for that. We talk about having new things, buying special gifts for ourselves. She doesn’t want to make a list and have someone else get her what she needs. She wants to go on her own and play, buy what she wants, choose what she wants. She wants to feel free, independent, and empowered to give herself that.
She cannot understand that’s no longer possible. Even if she could, the feeling of wanting what she once had would likely persist. It breaks my heart.
Photo by Gemma Chua Tran on Unsplash
I have feelings, too. I turn to journaling, to writing. I’ve tried without success to find support groups in my area; then I found a mental health professional experienced in family trauma to speak with. I talk with Mom’s hospice team regularly; having worked for hospice, I know they want to support the whole family system. I extend to myself all the gentleness, support, and patience I extend to Mom. I hold my thoughts loosely and hug my feelings. They need comfort. They need expression. I think about boundaries and regulate my empathy. I’m newly appreciative of my own freedom and independence. I look for reasons to laugh, reasons to smile. I look for ways to connect to others. I intend to learn to receive as well as I give.
As I write this, an exuberant spring wind blows outside, pushing snow off roofs, tangling our wind chimes, shaking the lilac branches with their new, hard buds. One of the cats is stretched out on my desk in the sun. My desk calendar was in his way, so he kicked it off with his back feet. A glass paperweight pins down a card for Mom, the envelope addressed and stamped. Every Monday I put a card in the mail for her. I do it for me. She does not acknowledge them or remember receiving them. I hope they’re all displayed in her room, but I don’t know. I’m not sure she can read them. I imagine a staff person or hospice team member reading them to her. I’m not sure she can connect them with me at all. But it makes me feel better to make the gesture, and I enjoy picking out cards I think she’ll like. I’ll write a couple of lines about the weather, about the moment, about spring. I’ll sign it with the word love. I’ll put it in the mailbox and raise the flag, and the mail carrier will take it in an hour or so.
Feelings are pure. Feelings are simple. It’s our thoughts about our feelings that fester, tangle, entrap us. I want to soothe uncomfortable feelings, make the pain stop, dry the tears, turn aside the rage. All my life it’s been my role to take care of Mom, fix whatever was going wrong. I still feel her emotional dependence. I still feel the responsibility to solve every problem for her.
But Mom has traveled now to a place I can’t go and she can’t come back from. She can’t follow me, clutching at my clothing, needing, wanting, pleading, demanding, rejecting. I can’t walk beside her in a way she recognizes. We have separated. I am relieved. I am absolved. I grieve for her anguish. Witnessing her feelings without taking action to assuage them is perhaps the hardest thing I’ve ever done in a lifetime of hard things in caring for her.
But I cannot fix this. Neither of us can go back. There’s only feeling our way forward.
Questions:
- What has been you experience, if any, with dementia in a loved one or family member?
- What are your thoughts and feelings about hospice care?
- What’s the hardest thing for you in supporting an elderly loved one?
- Do you worry about developing dementia yourself? Have you made a plan?
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