I was taught, as a child, it was my job to alleviate distress. One must always respond immediately and help the sufferer. It went far beyond duty and obligation. If I did not fix the distress of others, my childish world would fall apart. Everyone would leave.

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For a child, such consequences are death.

I was also taught “help” meant doing anything and everything I was asked to do, immediately, unquestioningly, and unendingly. My own distress was of no consequence at best and a direct threat, an unwelcome competition, at worst.

That core teaching stayed with me as I grew up, and has been a keynote of my behavior and experience most of my life. I wanted to help people. When people around me suffered, I felt an overwhelming, painful panic, as well as complete responsibility. I had to do everything I could, give the situation my all in order to “help.”

I also grew up with an inability to respond to my own distress. Hunger, thirst, fatigue, emotional and physical pain, were all ignored. My disconnection from my own needs and experience led me into chronic pain, eating disorder, depression, and anxiety. I was unaware of my traumatic wounds. I had no interest in helping myself. Helping myself was selfish, bad, and unloving.

Then I studied emotional intelligence and all the work and therapy I’d done over the years with guides and teachers as well as on my own (see my Resources page) wove together into an intention to reclaim my health and my self.

This blog has been a key part of that work.

I still don’t like to watch people suffer, but I’m more careful now about “helping.” I’ve learned suffering is not necessarily the enemy. We get ill, have painful emotional and physical injuries, have uncomfortable feelings. We age and our bodies and sometimes our minds wear out. To be human is to experience these things; they’re inescapable. We can’t control what happens to us, but we can control how we deal with such events. When someone is suffering, I’ve learned to be less reactive, to remember it’s not my fault or my responsibility to fix it. I’ve learned to notice whether the sufferer is helping themselves before I jump in.

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I have learned a bitter lesson: No one can help someone who will not help themselves.

I realize now we can’t always go back to where we were before we were wounded; we can’t always heal the wound itself. Sometimes our wounds and suffering are taking us into something new and what’s called for is not healing, but tolerance and patience.

What does “help” mean? This is an important question. Does help mean we respond promptly to all demands, whether or not they are safe, sustainable, or even possible? Does help mean we make thoughtful, intentional choices for safety and practicality even if those choices go against what we are being asked to do in terms of “help?” Do we decide what the best “help” is, or does the sufferer get to choose what kind of “help” they want?

I’m still uncomfortable talking about my own pain. Honestly, I’m still uncomfortable even noticing it, but I practice every day at staying present with how things are with me. It feels selfish and wrong, but I know that feeling doesn’t mean it is selfish and wrong, just that it’s very different from my early training. Sometimes the choice that feels worst is the best choice. Sometimes suffering is the only possible road forward into peace, growth and resilience.

None of us has the power to help anyone avoid suffering. I confess I’ve argued with that reality all my life, but it hasn’t done a bit of good. In fact, it’s done harm, most of all to myself.

I have occasionally, in the depths of anguish, asked for help. When I do that, what am I asking for?

Nothing tangible. Not money or a thing. Not love. Not sex. Not a gallon of ice cream. I’m not asking for someone to come along and fix it all, or take responsibility.

I’m asking to be heard. I’m asking for someone to say, “I’m here. You’re not alone. I believe in you. I know your goodness, your strength, your courage.” I’m asking for a safe place to discharge my feelings. This might involve snot, wet Kleenexes, rage, and a raised voice.

A safe place is not a place where someone else takes responsibility and fixes, or asks me to stop feeling my feelings, or is clearly uncomfortable with my suffering. A safe place is provided by someone with healthy boundaries who is willing to witness my distress without feeling compelled to fix it.

Witness. A witness. That’s ultimately what I want. Just someone to be there with me for a little while. I can face my own demons and challenges, but I can’t do it all alone.

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None of us can. We are social animals. But we can witness for one another. We can sit quietly, holding a safe space without judgment or a fix or advice, and just witness. Pass the Kleenex.

It’s the hardest thing in the world for me to do. Simply witnessing seems so passive, so weak, so useless. Someone right in front of me is deeply distressed and I simply sit like a bump on a log witnessing? Are you kidding me?

Surely, I can do better than that. I can do more than that. It’s up to me to make their suffering stop!

And yet. And yet. Isn’t finding a witness incredibly hard? How many people in our lives can take on such a role? What an inestimable gift, to be willing to walk beside someone who is suffering, to be willing to stay, to not look away. What if our boundaries were so healthy we could do that? What if we weren’t afraid of suffering? What if we were wise enough, strong enough, to make room for it and sit down beside it?

Someone I love is in great anguish of spirit. They beg me for help, but a very specific kind of help which is ethically and practically impossible for me or anyone else to give. Which makes me an enemy. Which makes my loved one even more alone than they already feel, more victimized, more powerless, more confused.

There is nothing about this that doesn’t suck. I dread the phone calls beyond words because I don’t want to witness this suffering. It feels unbearable. But my loved one must bear it, and if they have to, I can. I choose to witness. It feels like nothing. It’s not what’s wanted. But at this point it’s all I can do. So I will keep calling and answering calls. I will get up in the morning and talk to case managers, nurses, CNAs, palliative care consultants, nursing homes, and whoever else will talk to me. I will update friends and family. Then I will get up the next morning and do it again.

I pray there is some power in witnessing, some rightness. I pray that somehow my love and willingness to remain a witness does a little bit of good, provides some small comfort, lights a candle in the darkness of dementia, even for a moment.

And I search inside my own suffering for wisdom, for healing, for grace, and for faith.

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