by Jenny Rose | Apr 27, 2024 | A Flourishing Woman, Mind
A few weeks ago I explored self-trust. Until I wrote that piece, I had not realized how deeply I distrusted myself. (As a writer, I find nothing clarifies my thinking better than written inquiry. The process uncovers so many unconscious and hidden things.)
In that post I speculated about choosing to trust myself, as trust is a belief, and beliefs can and do change. I thought it would be interesting to consciously trust myself for a few days and see what happened.
What has happened is a profound change in my interior life and my mental health. What happened is the realization that learning to self-love, while a healing and valuable practice, was not, after all, what I most needed.
This still seems strange to me. We are certainly taught love is the greatest feeling, the closest to the Divine we can come, the best we can be as human beings. We define love endlessly, discuss it, long for it, search for it, tell ourselves it will fix everything if only we can find someone to love, if only someone will love us completely, unconditionally, forever and ever (or at least until death do us part), amen.
But my experience has taught me love is changeable and elusive. All kinds of abuse masquerades as love. We don’t all mean the same thing when we express love.
By Marianna Smiley on Unsplash
Perhaps most heartbreaking of all, we don’t always value the love that comes our way, and we may learn to distrust it. Every master manipulator in the world recognizes the power of our need for love. Once that need is used against us, we are on our guard against love.
Love hurts. Love can endure, but a withered, starving love living on memories and perhaps based on delusions or the simple call of blood is a desolate ghost haunting our hearts. Love can scar us so deeply we’re never the same.
The daily practice of loving oneself is less complicated than loving another. At the very least, I know what I mean when I say it to myself, and my self understands my demonstration of it. Nothing is lost in translation. I can trust my own love.
And there’s that word – ‘trust’. Trust and love: does one require the other, or are they separate? One is a feeling (love), and one is a belief (trust). Both can be manipulated. In terms of our love and trust of ourselves, both are highly subject to interruption or even amputation by those who influence us, especially as children. If we are repeatedly given to understand we are not lovable or not to be trusted, we internalize those beliefs before we even have language. We don’t learn to love and trust ourselves.
Internalized beliefs are enormously powerful right up until we examine them closely, at which point they can vanish like a wisp of smoke. Once we’ve seen them as false, we become conscious of their pervasive influence and our internal structure changes in astounding ways.
This is what has happened to me.
When I set out to live a few days consciously trusting myself, I realized within an hour my obsessive and unending loop of review and preview. Just like a fish in water, I have no memory of ever living any other way, so I never noticed it before. Well, that’s not true. I noticed it, I just called it anxiety. As I’ve always been anxious and expected I always would be, I didn’t think further about it.
In an example from my childhood, when I was very young, kindergarten age, my mother had a lot of pain and was quite unhappy. I had a younger brother and we had cats and dogs. In an effort to take care of my mother, I learned how to do things like make beds, sort laundry, set up the coffee maker, make orange juice in the blender (frozen concentrate), take care of the animals, tie my own shoes and teach my brother to tie his, etc.
I vividly remember lying in my bed, my brother across the room in his bed, reviewing everything I’d done that day. I had trouble with hospital corners on the beds because I wasn’t strong enough to tuck the sheets in properly under the mattress. Mom had to bend over and do them again, so I failed to help and caused her pain. I didn’t turn a sock right side out when I sorted the laundry. I could tie my own shoes, but I was baffled trying to teach my brother to tie his while facing him. And so forth and so on.
Review: I hadn’t done it right. I hadn’t helped. I hadn’t been perfect. I hadn’t made Mom happy. I had to do better. Preview: Next time I would look at every piece of laundry, be sure nothing was inside out. Next time I would remember how to sort it properly so Mom wouldn’t have to bend down and do it herself. Next time I would figure out a way to get the hospital corners right, but I wouldn’t have to face that again for a week or so. Maybe I’d be stronger or bigger? If I got behind my brother and tied his shoes from that angle, could I do it? I had to do it! It hurt Mom to bend down.
This habit, this ongoing internal review and preview, has never stopped. Whatever I’ve just done, I review it. Whatever I’m about to do, I preview it. Racing thoughts. Circular thinking. Problems with sleep and chronic tension. Adrenal overload and exhaustion. The need to distract, to make it stop. The inability to have a quiet mind. Most of us are familiar with the symptoms of anxiety.
I believe my anxiety has been rooted in my self-distrust. When I decided to behave as though I do trust myself, I became conscious of my lifelong review and preview habit, as much a part of me as my blue eyes. At the same time, I discovered the solution. The minute I catch myself either reviewing or previewing, and it’s many, many times a day, I say, “I trust you,” to myself.
And I stop. I don’t need to review. I don’t need to preview. I did the best I could, because I always do that. I’ll do the best I can, because I always do that.
“I trust you.”
I’ve also realized, after long experience of sorting through my own psyche, this self-distrust is not mine. It doesn’t smell like me. It’s not home grown. It came from someone outside me, like so many of the unmanaged, unacknowledged emotions and beliefs I’ve carried, recognized as not mine, and let go.
By Danijel Durkovic on Unsplash
I discovered, as I wrote that post on trust, I do trust myself. I’ve always had cognitive dissonance around trust. Those around me didn’t trust me, yet I trusted myself. I trust my intuition. I trust my empathy and sensitivity, I trust my intention to do the right thing, I trust my flexibility and my ability to learn. I trust my ability to love. I trust my ability to think critically and recognize the truth, no matter how unwelcome. When I assure myself of my trust, it’s not a lie. It’s a truth buried for years under trauma.
I suspect many of us review and preview, consciously or not. It’s wholly ineffective in terms of healthy functioning. It makes us less flexible and resilient. It tires us out, creates long-term chronic stress, and is a constant no-confidence vote we give ourselves. It doesn’t make us more perfect; in fact, it does the opposite because it encourages us to be brittle and fearful. It doesn’t stop us from making mistakes. It turns us away from presence and authentic expression and towards behaving like automatons with a rigid script.
It gives us anxiety.
Most of all, reviewing and previewing doesn’t keep us safe. It doesn’t help us feel loved.
The compulsive habit of reviewing and previewing took up an extraordinary amount of space in my mind and required enormous quantities of energy and attention. Without it, I feel an internal spaciousness I’ve never had before. I read more. I write more. I can rest and relax. I’m far less driven, far more comfortable in my own skin. I’m more present and mindful in the moment, and with my feelings and my body.
I’m far less anxious.
Learning to love myself has been a gift. Reclaiming trust in myself has changed my life.
Questions:
- Do you love yourself? If not, why?
- Do you trust yourself? If not, why?
- If you could only have one, would you prefer others to trust you or love you?
- What do you think is more important socially: love or trust? Why?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Nov 4, 2023 | Emotional Intelligence, Feelings, Love
Elizabeth Gilbert is on Substack, and I follow her. Best known for her breakout novel, Eat, Pray, Love, she’s a journalist, speaker, and writer. Her Substack is called Letters From Love and more than ten thousand subscribe.
Letters From Love is the most uncomfortable Substack I read. I write that statement with wry humor. The premise is writing love letters to oneself.
Photo by Angelina Litvin on Unsplash
When I first came across it, I was equally horrified and attracted. I poked around, reading here and there, and realized quickly Elizabeth and I share certain experiences. I already knew this, because years ago I came across her brilliant piece on tribal shaming, which I immediately blogged about.
It takes one to know one.
When I found Gilbert on Substack I subscribed, so her newsletter comes regularly into my Inbox. Sometimes I ignore it for days, but sooner or later I open it and read. She posts love letters she’s written to herself. Publicly! She also has a podcast, does interviews, and posts love letters others have written to themselves.
(Cringe.)
I can’t help but notice my violent reactions. Me being me, I don’t choose to turn away and read something more comfortable. I have questions. What is my deal? I’ve been working for more than ten years on self-care and self-love, on reparenting myself and healing old trauma. Why am I not delighted with the idea of a practice of writing love letters to myself?
(Shudder.)
My first reaction is to crawl through the screen and beg her not to expose herself like this. Beg them all not to expose themselves. Don’t they understand how dangerous it is? Haven’t they learned a display of this kind of vulnerability will attract destroyers with stones and blades and (worst of all), terrible, terrible words of contempt? Oh, and don’t forget lethal indifference.
(If you’re not paying attention, I’ve now told you everything you need to know about the way I grew up.)
Except clearly the sky is not falling. More than ten thousand people are reading Gilbert’s love letters, and she goes on writing and publishing. The discussions within her community are neither indifferent nor contemptuous. On the contrary, they’re supportive and tender.
Which leads me to conclude my red alert reaction is about me rather than the practice of writing love letters to oneself.
Hm.
How can they do this? I wondered.
Could I do this?
No, no, no, not to publish! I reassured myself hastily. Just for me. Like my journal. My eyes only. A delete key. No one ever needs to know.
But there was a problem. Elizabeth writes to herself with endearments. Creative, funny, quirky endearments, like “my glinting little piece of foil from a gum wrapper.”
OK, now that’s fun! Words are so much fun!
What kind of endearments would I address myself with?
I’ve had pet names for my kids and my animals. No one else, really. Certainly not myself. My tone with myself has mostly been the harsh, hectoring, contemptuous, cold voice I internalized from the adults around me as a child.
More discomfort.
But, words … If I had a child just like the child I was, what endearments would make her giggle and feel loved and seen?
So I started a list of whimsical endearments. A very private list. So don’t ask! I was a little ashamed of myself, but no one else need ever know …
Photo by Chris Ensey on Unsplash
The list was fun, because it was a creative exercise. I can do creative exercise. It occurred to me part of my resistance to love letters (either giving or receiving) has to do with my disbelief in words. (Ironic.) Words can say anything. People say anything. The proof is in action. The older I get, the less interested I am in words, and the less I believe them. Demonstrate. Act. Show me, don’t tell me. As I’ve worked to heal I’ve developed routines for self-care, for eating well, for exercise, for sleep, for writing. I’ve been successful, and take much better care of myself than I ever have before. I take better care of myself than anyone ever has before, in fact.
But I haven’t written love letters to myself. I would have told you I could do so, if I wanted to. If I thought they’d have value. If I thought I’d believe them …
I grew up with emotional withholding. I’ve believed I’ve broken that pattern with my own children and my loved ones, including my animals. But now I wonder. Isn’t demonstration of love with no words a little sterile? I know the mixed message of loving words and abusive actions is devastating. Is active demonstration of love without words also confusing? Am I withholding from myself? Obligation, responsibility, duty – all these I’m very good at. But those are stony words. Where is the tenderness, the humor, the generosity? How about compassion? I feel those for others. I’ve spoken them from the heart; written love poems, love letters, notes, and cards – for others. Could I learn to feel and express them for myself?
Then I got sick with COVID, the events of the last couple of years (traumatic, protracted move; my mother’s decline and death) caught up with me, and I felt miserable. At once, I began putting pressure on myself to get back to writing, get back to work, get back to exercise, take out the trash, do the shopping, and generally pull myself together, because, after all, the world is full of bleeding, suffering people and I have a good life, a privileged life, and don’t deserve to feel sorry for myself and be lazy.
Not a love letter, in other words.
In the middle of the week during which I sat on the couch, alternately shivering and burning and blowing my nose, I wrote myself a love letter.
Well, maybe a let’s-see-if-I-can-tolerate-you letter.
It was an extremely strange experience. In fact, it made me cry, which didn’t help my congestion. Or my cough. At the time I had no sense of taste or smell, and I reflected that it was like that. When I tried to turn toward myself with love, tenderness, affection, whatever you want to call it, there was nothing. Just … nothing. A thick, numb shell between me and myself.
It made me so sad. Immediately upon the heels of that, I was ashamed. Because, you know, self-pity.
Almost as bad as self-love.
Wait now, what?
It’s bad to love yourself … if you don’t deserve it.
And, readers, I thought I’d left that belief far behind in the dust.
Then I began to feel angry, and I told myself I was going to start practicing writing love letters to myself. Because I deserved and deserve love as much as anyone else. I’m not important enough to be the most loathsome person in the world.
Questions:
- How does the idea of this practice make you feel? Can you write a love letter to yourself? With endearments and everything?
- If you could write a love letter to yourself, how would you feel about making it public?
- What do you most need to hear from someone who loves you? Would it have power if you wrote it to yourself?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Apr 8, 2023 | A Flourishing Woman, The Journey
Delayed closure is a wound treatment strategy in which complex wounds with extensive soft tissue damage and high levels of possible contaminants are treated with initial control of bleeding, cleaning, and debridement, and then left open for a period of time during which the possibility of infection is treated proactively. At the time of delayed wound closure, further debridement of scar tissue or dead tissue takes place.
As I count down the days and prepare for my second trip out to Colorado this year to manage my mother’s recent admission to memory and hospice care, the phrase ‘delayed closure’ reverberates through my mind.
Photo by Ryan Moreno on Unsplash
Delayed closure.
I have recognized for some weeks the significance of this second return to the place I called home for more than 20 years and my frail, confused, aging mother. At least, I have begun to recognize the significance. Every day brings added clarity. Awe is not too strong a word for what I feel.
When we flee people, places, or situations (and my flight from Colorado to Maine eight years ago was all three), it’s not an elegant, dignified process. It’s a frantic life-or-death flailing and thrashing, a single-minded determination to survive, whatever it takes.
The process leaves wreckage behind, a lot of unfinished business, a lot of rending and tearing, misunderstanding and hurt. It leaves, in other words, a complex psychic wound, not a clean laceration.
When I found myself in Maine, I thought I would not survive the trauma. I had torn myself up by the roots and gone to ground in a strange place I’d never been before. I felt like skin and hair wrapped around a suppurating wound of such longstanding duration and composed of so many different kinds of damage it didn’t seem possible it would ever heal. I didn’t think of healing. I didn’t hope for healing. I was a feral creature in survival mode.
I had no idea I had in fact saved my own life and taken the first steps to transformation, and I wouldn’t have cared if I’d known.
All I was doing was surviving.
In medical care, part of the strategy of delayed wound closure is giving the body’s natural defenses a chance to overcome infectious bacteria rather than sealing them in.
What were my natural defenses?
Photo by Aaron Burden on Unsplash
Water. My home in Colorado had been enduring a years-long drought. The wind blew all the time. Gaunt, dusty cattle stood sunken-eyed on plots of hard-baked ground. The wind blew relentlessly, scouring the land with flying sand, dust, and debris. We prayed for rain as we hauled grey water to our gardens. The city imposed restrictions on outside watering, car washing, any outside fires. Trees died. Fires consumed the land. It was apocalyptic, a hellscape with no relief in sight. Our water bills went up and up for simple household use. The rain didn’t come, year after year.
Maine was a revelation. Water. Big water, like I’d never seen before. The Kennebec River. Puddles everywhere, each with a duck. The people here call an enormous lake (to my eyes) a pond. Huge trees. Hip-high ferns. Moss.
Moss!
Rain. It rained. It actually rained. Measurable rain falling for hours, sweet, cool, life-giving. Mist. Fog. To breathe was to absorb water like a desiccated sponge. My cracked skin healed, drinking in the moisture. I lived in a house with a hand-dug well. No water bill. Free water! I trained myself to flush the toilet every time! My hair curled, growing out rather than down.
I lived in the country in Maine. No one knew me. No one knew I existed or any member of my family. For the first time in my life I escaped everyone’s expectations. No one demanded anything from me. No one watched me with critical eyes. No one told stories about me. I had no reputation. I was free, untethered from everyone and everything. I could think my thoughts and feel my feelings in safety and privacy. I could read, or work, or sleep, or take a walk, or garden without interruption or someone telling me I was failing. No one demanded anything from me. I had no emotional labor to do. I rested in the healing solitude of nature, laying my hands on trees, sitting on rocks watching little spring streams trickle, sitting in the sun listening to the birds, lying in bed listening to the owls, coyotes, and spring peepers in the pond.
Writing. In 2016, a year after I arrived, I began this blog. I had no expectations. My sole intent was to write my truths in my own uncensored voice without trying to please anyone, in spite of my fear. I had done some writing in Colorado, but always with a sense of guilt and shame, always with the fear of what others would think. I knew everything I wanted to write would be looked upon as unforgiveable betrayal or wildly shameful.
Photo by Angelina Litvin on Unsplash
In Maine, so far away in a new life, I discovered my courage and started, week by week, recording my journey from a broken, cringing creature, filled with self-loathing, to a strong, confident woman. At the same time, I pulled together my scrawled notes and the stories I’d written in the dim, hidden edges of my life and finished a book. Then I started another one. Then I finished the second book and started a third one.
These were my natural defenses: water, nature, and writing. Slowly they overcame the infection in my ravaged soul.
Yet the wound did not close. It stopped stinking and bleeding. Scar tissue formed. But I had lost too much to pull the edges together and make a neat closure. I had saved my life. I had survived and gone on to thrive. But I knew I was not done.
I know an old story about amends; it says only the hand that dealt the wound can heal it. Sometimes we must flee in order to live to fight another day. I fled, and I was right to do so, but flight leaves no time for closure. For closure sometimes we must go back.
Delayed closure.
The first time, in January, I was afraid to return. Afraid of judgement. Afraid of old pain. Afraid of what others would think, or say. I was afraid to have my memories stirred up. I was afraid my wound would tear open again, and this time I would not survive.
What happened instead was acceptance and love in the arms of old friends. My love for them was met by their love for me. The place, dear and familiar, welcomed me, though I no longer call it home. I found changes, of course, but not painful changes. Natural changes. I realized my fear had kept me from the closure I need, and my fear, once faced, amounted to nothing. In reclaiming my power, I was able to gain perspective. I’m just a part of that little town in the way it’s a part of me. I’m not the most important part of it and never was. It’s not the most important part of me and never was.
Having reclaimed my power, I felt and expressed my honest love and affection for the place and the people without needing anything in return, although I received much in return with gratitude and, I hope, grace. I examined the wound again, debriding scar tissue, cutting away necrosis, until my soul was healthy and vital once more. Some lines. A few silver scars. But free of infection, free of pain.
Still, when I came home to Maine again, I knew I was still not finished. Closure was not complete. I knew one day I would return once more to the place I had left.
In less than a week I’ll be there again, this time for a longer period. We must prepare for and hold a living estate sale: clean, sort, sell, discard, donate, and perhaps store a house full of, not my mother’s life, but her stuff. The things from which she constructed her identity. We must see to repairs and the business of welcoming renters in.
We will also visit my mother in memory care. If she’s well enough, we’ll take her out for a meal or a little gentle shopping. Perhaps we can sit in the sun with her. Or, perhaps she’ll be angry and bitter, refuse to sit in her wheelchair, demand to go buy a car, or some other wildly inappropriate and impossible thing.
I will see her again, though, speak to her, tell her I love her. I’ll check to be sure she has everything she needs. I’ll speak to the staff, to her hospice team. I’ll buy some books for her from the Friends of the Library bookstore she herself created and helped run for years. If she can’t go out, we’ll bring food in, perhaps a flower in a vase, and sit in the dining room where other residents can see her with her family, give her the dignity of being loved and cared for rather than forgotten and discarded.
It will be hard, or it will be easy, or it will be both. Dementia is like that. However it is, though, I won’t take anything to heart. Her power to hurt me has unraveled, along with her memory and cognition. She’s physically safe at last. Her physical and emotional wellbeing are no longer my responsibility. They never were, of course, but I didn’t believe that until recently.
Photo by Jeremy Bishop on Unsplash
I’m free. Free of my painful memories, free of old stories and narratives, free of the fear of what people will think of me. Free of fear, most of all. Freedom fills in that old wound and now, at last, I can pull the edges together, stitch them with words, with love, with wisdom, with forgiveness of her and myself. I have traveled a long, long road through darkness, despair, self-hatred, and trauma, but I still love. I still care. I still dance, and laugh, and write, and thrive. I still belong to Life.
I did the very best I could every step of that journey. I was blessed with guidance and friends and teachers. My wounds were not mortal.
Now, journey’s end. Delayed closure. New beginnings.
Questions:
- What is your experience of going to a place you called home after a long absence?
- What open wounds do you still have?
- How have you closed longstanding wounds?
- Do you see a living estate sale as a cruel betrayal or an appropriate business choice?
Leave a comment below!
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Mar 11, 2023 | Emotional Intelligence, Feelings
In January, my brother and I traveled to Colorado to transition our mother into memory care.
As some of you know and many can imagine, a journey into dementia is an unsettling one on good days, by which I mean relatively calm days. On bad days, days of panic and confusion, days of anger and restlessness, it’s heartbreaking.
One of the greatest challenges for me is the chaos of my jostling feelings, all mobbed together and struggling for attention. I can’t feel everything at once, and I can’t focus on one thing at a time. One minute I’m entirely relieved because I know she’s in a safe, protected environment being well cared for, which has not been the case for the last ten years. Knowing she was living alone, driving, walking her dogs, and slowly losing her ability to function and manage her own life and I could do nothing about it took a daily toll.
Photo by Cristian Newman on Unsplash
The next minute empathy and compassion overwhelm me and I’m reminding myself to maintain boundaries. She is not me. I am not her. My attention needs to be on taking care of my own feelings. If I could have effectively helped and supported her, I would have started doing it when I was five years old. I never found a way because there is no way.
Then I’m angry. Angry because I tried to avoid this particular outcome. Angry because she wouldn’t help herself when she had the ability to. Angry because I’m still in the position of parenting and taking care of my parent, which has always been the case. Angry about her suffering and confusion, and mine.
At the end of every conversation we have on the phone, I tell her I love her. It’s true. I have always loved her, but was not allowed to say so. She would ignore such a statement, or dispute it. She says it back to me now. It always makes me a little bit mad. It was a thing she would not say outright before. She’d sign herself “Love, Mom,” but she wouldn’t say it. She’s not a person who offers or accepts any kind of touch. Does she really love me, or is she merely participating in the familiar ritual of the exchange? Did she feel it all along but couldn’t say it?
Even before her dementia onset, Mom wouldn’t have answered these questions. I will never know.
I’m also sad. It’s not a sobbing, tearing grief, but a gentle, diffuse one, like watching a teabag steep in hot water and gradually turn it into tea. I don’t feel it all the time. There’s resignation in it, and acceptance, and surrender.
Mom is receiving palliative care under a local hospice organization. They recommended a book to me, titled The 36-Hour Day, by Mace and Rabins. I bought a copy. It was hard to read because it stirred up uncomfortable feelings, but it’s also a goldmine of information, including the latest research and standards for dementia care. It’s enormously validating. I read about specific behaviors and the stages of dementia and realize I have been struggling with Mom’s gradual disintegration for years. Nobody else saw it, so I was alone with my fears and concerns, but I knew she was slipping and I suspected this time was coming.
What I was most hoping for from the book was a script for dealing with difficult questions and conversations. I have some professional experience with dementia and am comfortable with refraining from using logic or trying to bring anyone back to reality. Mom has always believed entirely in her narratives, which often were distorted, paranoid, and inaccurate, so I have a long and painful history of managing her stories and beliefs. However, now the briefest conversation is fraught with pitfalls I don’t know how to respond to or address. I spend a lot of time on pause, frantically trying to figure out the best way to engage with her.
Photo by Quino Al on Unsplash
The book didn’t give me a script, per se. What it gave me was a simple strategy for everything: reflect and validate feelings. Not the stories (thoughts), but the feelings. Emotional intelligence strikes again.
This was good news for me because I’m highly emotionally intelligent, even in this difficult personal context. I know how to recognize, name, and manage feelings. On the other hand, it seems like so little to offer. It’s hard to provide comfort in the context of dementia. Language feels pointless. Nonverbal communication is useless over a long distance and, in this case, in person. Mom has flinched away from me too many times for me to even think about touching her. On the phone, all I have is language. Following my impulse to reassure, to explain, to provide some kind of structure, only makes things worse for both of us. I measure my effectiveness by the level of her distress, which is eerily like measuring my effectiveness by the degree to which I can please her. Even that may not be accurate. Mom’s distress has always been extreme in the face of boundaries, limitations, the word “no,” and any questioning of her particular narratives and beliefs. It’s a personality trait having nothing to do with me personally. The mere fact of her feeling confined (which is accurate) may be the root of her distress rather than anything I’m saying or doing. Or not saying or not doing.
It occurs to me feelings live inside the just-born infant. Maybe before that. Certainly, we experience feelings long before we master language. I’m realizing intellect, logic, language, can all fall away at the end of life, too, but the feelings remain. I assume our need to be heard and validated remains.
Conversation with Mom is like wandering blind through a meadow filled with rabbit holes. Dementia is at once simple and extremely complicated. I never know how she will be or what she will say next. Sometimes she sounds down and depressed. Sometimes cheerful. Sometimes calm. Once she even told me she was “content,” a word I’ve never associated with her before. Sometimes she’s anxious, sometimes angry, sometimes groggy and hardly responsive.
When we talk, I work to set aside (temporarily) my own feelings, thoughts, memories, expectations, and predictions. I ask her how she is and listen to her response, looking for the feelings. When she tells me she needs to leave there because “everybody steals,” I sidestep the stealing accusations and acknowledge it must be an uncomfortable and discouraging way to live, and I can understand why she doesn’t like it. She perseverates on this theme off and on, and I enlarge on how difficult the feeling of losing things is, how unsettling to not be able to find our possessions. After all, she’s lost her whole previous life. Her feeling of loss, of things missing, is based in reality. On the other hand, her paranoia and fear of people (including me) stealing money from her was in place long before her dementia. I was never able to persuade her they did not reflect reality. I certainly can’t do it now.
Reflecting and validating her feelings back to her feels inadequate. It even feels condescending. But there’s nothing else I can do, nothing else to say. Witnessing her feelings is all I have left.
And, after all, maybe that’s a lot. We’re not very skilled with feelings in this culture. It’s not easy to find someone who will just listen without trying to fix or solve. Perhaps great healing lies in being heard with nothing added. I hope so.
Another constant theme is one of buying a car and going shopping when we visit. When I ask her what she needs, she can’t tell me. She needs “things.” When I ask her if she’s started a list, she never has. We are not sure she can read or write anymore. I realized when we went out to move her and worked in her house she’s a shopper. She has enough clothing for three women. Her closets were filled with shoes, both old and worn and newer. She had six or seven open bottles and jars of the same products. Her cupboards were packed with supplements and vitamins for both herself and the animals, many of them outdated. As her confusion grew, it appears she self-soothed by shopping and receiving packages in the mail. So, we talk about how much fun it is to take a day and shop for this, for that. We talk about having new things, buying special gifts for ourselves. She doesn’t want to make a list and have someone else get her what she needs. She wants to go on her own and play, buy what she wants, choose what she wants. She wants to feel free, independent, and empowered to give herself that.
She cannot understand that’s no longer possible. Even if she could, the feeling of wanting what she once had would likely persist. It breaks my heart.
Photo by Gemma Chua Tran on Unsplash
I have feelings, too. I turn to journaling, to writing. I’ve tried without success to find support groups in my area; then I found a mental health professional experienced in family trauma to speak with. I talk with Mom’s hospice team regularly; having worked for hospice, I know they want to support the whole family system. I extend to myself all the gentleness, support, and patience I extend to Mom. I hold my thoughts loosely and hug my feelings. They need comfort. They need expression. I think about boundaries and regulate my empathy. I’m newly appreciative of my own freedom and independence. I look for reasons to laugh, reasons to smile. I look for ways to connect to others. I intend to learn to receive as well as I give.
As I write this, an exuberant spring wind blows outside, pushing snow off roofs, tangling our wind chimes, shaking the lilac branches with their new, hard buds. One of the cats is stretched out on my desk in the sun. My desk calendar was in his way, so he kicked it off with his back feet. A glass paperweight pins down a card for Mom, the envelope addressed and stamped. Every Monday I put a card in the mail for her. I do it for me. She does not acknowledge them or remember receiving them. I hope they’re all displayed in her room, but I don’t know. I’m not sure she can read them. I imagine a staff person or hospice team member reading them to her. I’m not sure she can connect them with me at all. But it makes me feel better to make the gesture, and I enjoy picking out cards I think she’ll like. I’ll write a couple of lines about the weather, about the moment, about spring. I’ll sign it with the word love. I’ll put it in the mailbox and raise the flag, and the mail carrier will take it in an hour or so.
Feelings are pure. Feelings are simple. It’s our thoughts about our feelings that fester, tangle, entrap us. I want to soothe uncomfortable feelings, make the pain stop, dry the tears, turn aside the rage. All my life it’s been my role to take care of Mom, fix whatever was going wrong. I still feel her emotional dependence. I still feel the responsibility to solve every problem for her.
But Mom has traveled now to a place I can’t go and she can’t come back from. She can’t follow me, clutching at my clothing, needing, wanting, pleading, demanding, rejecting. I can’t walk beside her in a way she recognizes. We have separated. I am relieved. I am absolved. I grieve for her anguish. Witnessing her feelings without taking action to assuage them is perhaps the hardest thing I’ve ever done in a lifetime of hard things in caring for her.
But I cannot fix this. Neither of us can go back. There’s only feeling our way forward.
Questions:
- What has been you experience, if any, with dementia in a loved one or family member?
- What are your thoughts and feelings about hospice care?
- What’s the hardest thing for you in supporting an elderly loved one?
- Do you worry about developing dementia yourself? Have you made a plan?
To read my fiction, serially published free every week, go here: 
by Jenny Rose | Jan 28, 2023 | Emotional Intelligence, Feelings
As I write this, I have just returned from a long journey across the country and into my past. I’m home again, but the journey is not over and I expect to retrace my steps back and forth for some undetermined length of time.
The physical journey, however long, is nothing to the internal journey I’ve undertaken through my memories, family dynamics and history, and so much of what has shaped my life and experience.
Before I left, I came across this poem by David Whyte:
Here in the Mountains
There is one memory deep inside you.
In the dark country of your life
it is a small fire burning forever.
Even after all these years
of neglect
the embers of what you have
known rest contented
in their own warmth.
Here in the mountains,
tell me all the things
you have not loved.
Their shadows will tell you
they have not gone,
they became this night
from which you drew away in fear.
Though at the trail’s end,
your heart stammers
with grief and regret,
in this
final night
you will lean down at last
and breathe again on the
small campfire of your
only becoming.
Photo by Joshua Newton on Unsplash
“Tell me all the things you have not loved.” This is an invitation I’ve never heard before. My focus has been on gratitude, on reframing, and on finding something good in every situation. I call myself a pessimist rather than an optimist, though I do leave windows and doors open for good things to happen while preparing for the worst.
My friends and I talk at work about the way we avoid “complaining.” A male coworker was taught as a child to refuse to give way to pain and illness, to work through it silently and privately without “complaint.” Is complaint the same as acknowledgment? I’m not sure. Three of us, all women, are more comfortable acknowledging our struggles and distress than our male friend, but none of us want to hear ourselves “whining.” Is whining the same as acknowledgment? I’m not sure about that one, either.
Because of my own confusion and blurriness around the terms we use and the cultural pressure towards toxic positivity, speaking about the things we have not loved is a jarring proposal. I carried it as I traveled on cars and buses, airport shuttles and airplanes. I hardly wrote at all over the last week. One journal entry by hand on the plane and the rest of my notebook filled with to-do lists, notes, names and numbers.
But I thought about things I have not loved.
It’s not just the invitation, though. It’s the way Whyte suggests all the things we have not loved are the background against which our lives are pinned, the shadows defining the light. I think of the night sky, gleaming with stars. What would the stars be without the blackness around them? I think of candle flames, fireflies, a lone campfire in the wilderness in the black night.
Photo by Jeremy Thomas on Unsplash
And isn’t it true that the things we have not loved don’t go away? Don’t they stay with us more inexorably, in fact, than the things we have loved? It seems so to me. Thus the fear, the drawing away, the heart filled with grief and regret. But at the core of our lives perhaps there is a small fire, patiently burning, waiting for us to come to our trail’s end. I think some would call the small fire God.
I realize one of the largest things I have not loved is love. A strange thing to realize, and a strange thing to say, I know. But so often my love has been helpless. The strong bonds, history, and feeling (all of which I mean by “love”) I feel for my parents, my brother, and my sons have been the greatest sources of pain in my life. Five vast, dark, wildernesses surrounding five campfires, these five who are flesh of my flesh, blood of my blood. These five who I could never stop loving, even if I wanted to. No matter how great the shadows around the fires, the flames burn, warm, beautiful, cleansing, regenerative. Often, I wish I could stand just outside the firelight, unseen, and simply love without fear, without pain, without wishing to be loved in return. But I do draw away in fear from the heat, the flame, the passion of the fire. I cherish the fires and would protect them with my life, but I fear them, too.
I have not loved the trauma and abuse that has shadowed what I love. I have not loved my disillusionment or the terrible choices I’ve made in building boundaries and learning to love myself. I have not loved my feelings of loss, insecurity, scarcity, and exile. I have not loved my pain and grief. I have not loved learning to let go.
I did not love walking into my mother’s home, the place where she has lived her self-imposed solitary journey into dementia and inability to care for herself. I did not want to follow her trail into the darkness of fear and denial, marked with soiled clothing and bedding, desperate and increasingly nonsensical and illegible notes and reminders. I did not want to go through drawers and cupboards of vitamins and supplements; over-the-counter remedies for pain, sleep, memory loss, skin problems and digestion issues. I did not want to fill trash bags with worn-out but never discarded clothing and shoes, a thousand used emery boards, outdated products and food.
I did not love going through every stitch of her clothing, sorting, washing, labeling with a laundry marker and packing it all to take to her new home in a memory care unit. The day after I carefully loaded her dresser, newly cleaned and placed in her room, we visited and found she had dumped every drawer into her laundry basket. She was “packing” to go home.
I did not love doing any of it. I did not want to do it. It broke my heart and filled me with futile guilt and shame. But at the center of every bag of trash, every bag and box to be donated, every clean drawer and cupboard, burned the small fire of my love for my mother. Inescapable. Inexorable. In a strange way, all the things I did not love were fuel to keep that fire burning. The more shadows I found under beds, in closet corners, in drawers and cupboards she forgot she had, the brighter the fire burned. My pain and pity, my anger with her lifelong pattern of denial and rejection of any help or support, made the fire burn higher. To tend the fire is to face the darkness.
And I would not have the fire go out, though I feel torn into pieces by its presence.
Photo by Josh Howard on Unsplash
It’s been a dark week, a week of deliberately moving into the things I have not loved. Drawing back was not an option. I could only step into the void. But the darkness has held a thousand small flames. The faces of old friends, both mine and Mom’s. Her animals, once so beloved but now forgotten by her, rehomed and doing well. A hundred acts of kindness and generosity. Help with moving furnishings into her new room. A cherry pie. Hugs and tears. The good-hearted friendliness of dogs. Constant support. Texts, emails, phone calls – all messages of succor and sympathy for me and my brother, for Mom. The friend who cares for the plants. The friends who keep an eye on the house. The friend who took a load to Goodwill for me. The friend who will take out the mountain of trash in the garage. And, when I came home, the arms of the friends who welcomed me back.
The shadows and the light. The things I have not loved cradle the things I do love. I am so weary I cannot begin to unravel the paradox. Perhaps it cannot be unraveled, only accepted and experienced. Perhaps Mom is wandering in her own dark wilderness, seeking the small campfire of her becoming, and when she finds it, leans down to breathe upon it, she will at last know peace.
Questions:
- Share three things you have not loved.
- Do things you have not loved persist in your life? What creates a background for what you do love?
- What is the difference between complaining (whining) and acknowledgment? Do you believe it’s wrong for you to admit to personal struggles?
To read my fiction, serially published free every week, go here:
